• addysmum's Avatar

    addysmum asked a questionBreast Cancer

    New Doctor's

    13 answers
    • gpgirl70's Avatar
      gpgirl70

      That’s amazing leslie. I thought stage IV patients had to see their oncologist frequently. My mom has been stage IV for 11 years but she is monitored at least once a month sometimes twice. They watch her tumor counts and have changed meds several times. She had metastasis in her bones so maybe it depends on where the cancer metastasizes.

      about 20 hours ago
    • Carool's Avatar
      Carool

      I continued seeing my breast surgeon because, first, she wanted me to, and, second, because she gave me breast exams, and I trusted her. Everyone else who was treated at MSK twenty years ago, (and probably more recently) continued to see a breast surgeon. My surgeon was also a breast doctor. I see that different hospitals treat patients differently from how we were at Sloan. Then again, it WAS long ago.

      about 20 hours ago
    • BarbarainBham's Avatar
      BarbarainBham

      When asked, we usually recommend going to an NIH National Cancer Institute-designated Comprehensive Cancer Center because of the high quality of the doctors and facilities. In D.C., you're close to many. including two in Baltimore--Johns Hopkins and University of Maryland---not bad! Here's a link to a list by state with phone numbers:
      https://www.cancer.gov/research/nci-role/cancer-centers/find#Virginia

      Others here have mentioned other well-known cancer centers in that area, so maybe they'll comment. Best wishes!

      Hope you enjoy your move there. It's very exciting.

      about 5 hours ago
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    addysmum started following

    Question: New Doctor's

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    addysmum shared an experience

    Drug or Chemo Therapy (Started Lupron Shots + Lexetrole)

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    addysmum shared an experience

    Procedure or Surgery (Breast Reconstruction (Implant))

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    addysmum asked a questionBreast Cancer

    Oncotype Score 16 - Chemo or no

    10 answers
    • gpgirl70's Avatar
      gpgirl70

      One thing to think about are the long term side effects of chemo. I still have significant cognitive issues, had to go on heart meds for damage to my heart and I have neuropathy. I was 52 and very fit and active when diagnosed. I don’t know if I would do it again even though I was stage IIIc. I agree with asking the doctors what they would recommend if the patient was a close family member. I would also find out exactly what the statistics say. For example, the risk of recurrence may be 3% with chemo and 6% without. You can then decide if the benefits outweigh the risks. I know the 5 year survival rates for stage 1 are nearing 100%. I am not sure about recurrence rates or stats for younger women, however.

      3 months ago
    • Bug's Avatar
      Bug

      addysmum, what have you decided about chemo? Whatever you have decided, I hope you are at peace with your decision and are well.

      3 months ago
    • addysmum's Avatar
      addysmum

      I decided against chemo after going to a research bc at University of Miami. She ordered the mamma print which showed low risk... I am on Lupron each month to shut down my ovaries and letrolzole. Starting to feel more like myself

      13 days ago