• advice4me's Avatar

    advice4me posted an update

    Laparoscopic surgery is scheduled for July 8th. I put off the original appointment (scheduled for 6/17 because I have had a terrible cold & laryngitis for 3 weeks that left me with absolutely no energy. Monday I made breakfast: fried eggs, english muffin, and coffee. I was so exhausted, I went back to bed with my chest pounding. (The tests I have had say my heart is OK.) Today is the first day I felt close to normal. So I have 3 weeks to exercise and build up my strength before surgery. That is something to be grateful for.

    1 Comment
    • MizzVisual's Avatar
      MizzVisual

      Wonderful, may the Lord continue to give you strength mentally as well physically.

      about 1 month ago
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    advice4me asked a questionColorectal (Colon) Cancer

    Coping after colon surgery

    6 answers
    • advice4me's Avatar
      advice4me

      @alivenwell, JaneA, and Kbaarch. Thank you for your insight regarding after surgery care. Fortunately, the surgery will be laparoscopic so it's good to know about the waist binder. I do know about the medi-port pump. I actually still have it implanted from my breast cancer, but it stopped working a couple of years ago even though I had it flushed regularly. If I have to go through chemo again, I will definitely have another implanted because the first chemo blew out my main vein and the other arm can't be used because of the risk of lymphedema. I'm praying I will not have to go through chemotherapy again because the last chemo left me with permanent peripheral neuropathy and my medical oncologist says that the only cocktail that works for colon cancer also has a high risk of causing the same side effect.

      As far as food that is tolerable after surgery, I have been hunting for a website that has colon cancer recipes that I can make ahead. I finally found this site on Stanford'sNutrition Services for Cancer Patients. If it will help anyone else, the URL is https://stanfordhealthcare.org/medical-clinics/cancer-nutrition-services.html#recipes.

      about 1 month ago
    • Skyemberr's Avatar
      Skyemberr

      It sounds like you are on the right track. The main thing is that if you end up with an Ostomy you will have a different recovery and care needs than if your insides ask stay connected.

      I spent over 20 day's in the hospital with a sternum to pelvis incision, an ileostomy, transplant to rebuild the vaginal wall and drains and a lot of complications.

      Every surgery is different though. A nurse coming once a day after I went home was not enough. I needed constant care from my family. So talk to your doctor and see if that could be the case for you. Skilled nursing facilities are no fun but are an option if you need that extra care for a little while so you can get strong enough to be home alone.

      Also, if you end up with an Ostomy you will need to practice changing that bandage. Wound care nurses are wonderful and can help a lot with that.

      Good luck! I know it's a big deal to have this surgery. I'm about to head up to take care of my mom who has the same cancer that I do and is going to have her surgery finally. On the bright side, at least I can be a good advocate for her.

      I hope you have some folks there at your side. If not, you can always ask questions here if you think they are doing something wrong.

      about 1 month ago
    • Jayne's Avatar
      Jayne

      I agree with the others who recommend you have some help via a rehab facility following surgery. You may be ok, but it doesn't make sense to take the chance. Also, a trick I learned from my multiple surgeries if you don't have a bed that moves to help you out. Tie something (I used my bathrobe belt) to the end of the bed and use it to help you lift yourself up. Works like a charm if you are coping alone. Getting out of bed sounds easy until you've had abdominal surgery! Best of luck to you and sending healing thoughts your way.

      about 1 month ago
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    advice4me shared an experience

    Oh No (Just Diagnosed): This is my 2nd primary cancer. I just celebrated 5 yrs in remission for Stage 3 breast cancer and thought I could start doing activities on my "bucket list". Instead, I was diagnosed with a cecal mass that is cancerous. DNA tests showed I have 2 proteins missing that protect against cancer: mlh1, pms2. That may be why I have another primary cancer in addition to my breast cancer.

    I am to blame for this. My doctors tried to get me to do a colonoscopy, but I refused because the prep was unpleasant. Now, look at what I'm facing: the dreaded colonoscopy, CT scan (both done), major surgery, possibly more chemo, and a life filled with medical app'ts. An experience that is far more than "unpleasant". My bad.

    I'm crossing my fingers the surgery will designate it as only Stage 1 or 2 which means no chemo, but I doubt I will escape with no side effects.

    2 Comments
    • Jayne's Avatar
      Jayne

      I'm so sorry to hear this but don't blame yourself. Hindsight is 20/20 and we all do things (or don't do) that we regret once we have all the facts. It's easy to look back and recognize our mistakes. But it is what it is - so the best thing you can do is pass along your lesson to others that might feel the same way. At least you can make something productive come from your experience. Keep us posted on the surgery - and hoping for the best outcome possible.

      about 1 month ago
    • medale's Avatar
      medale

      Very sorry to hear that you are going through this again. I had stage IIIC colon cancer, partial colectomy and then adjuvant chemo with FOLFOX.

      Don't blame yourself for your cancer. No sense in trying to worry about the past. They probably did CT scans five years ago and nothing was showing at that time. So maybe a colonoscopy would not have found anything either. But either way, that's passed and nothing can be done about that.

      But as @Jayne says, share that lesson. Whenever I give a technical presentation these days, I include a slide with my "chemo" picture and urge people to get their colonoscopies as recommended and share the Dave Barry "A journey into my colon - and yours" article (https://www.miamiherald.com/living/liv-columns-blogs/dave-barry/article1928847.html) to raise awareness.

      Focus on the good news that the CT didn't show any metastasis and there has been a lot of progress in treating colon cancer in the last five years according to my oncologist. Hopefully, the cancer was caught early, your surgery will go well and there will be good news from pathology. Best of luck and lots of positive energy your way!

      about 1 month ago
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    advice4me asked a questionBreast Cancer

    Aromasin (exemestane) price gouging

    19 answers
    • debsweb18's Avatar
      debsweb18

      Mine is also from Caremark. 390 for 90 day supply. I pay 10. I had Optumrx before and paid 50.

      almost 2 years ago
    • debsweb18's Avatar
      debsweb18

      oh and the manufacturer of my extremastane is West-ward.

      almost 2 years ago
    • ChicagoSandy's Avatar
      ChicagoSandy

      @estellas, $249 for 90 days of generic letrozole is still unconscionable--I have Humana Enhanced Medicare Part D, and at my neighborhood indie pharmacy (the cheapest I could find) my monthly co-pay is $9, and then $5 if I've climbed out of the "donut hole." I suppose if your insurer won't pay for even generic letrozole, the Canadian online price is as good as it gets...unless GoodRx is cheaper.

      Before Canadadrugs.com shut down, I bought 270 days' worth of Dexilant (the only PPI that works for me but is still under patent) for $1100--half my PartD co-pays. Sure, that doesn't count toward getting me out of the donut hole; but for 2019, combining it with my most recent 90-day refill means I likely won't fall into the donut hole (unless there's another expensive brand-name drug I must take). Humana might even decide to stop covering Dexilant at all because there are generic alternatives, most of which are OTC--just as they decided to stop covering Nasonex (even the generic mometasone spray) because the other nasal steroid sprays are all OTC. (But they don't work as well for me--nor at all during a rough allergy season--and their smell is a turnoff). Maybe in 2020, when Dexilant goes off-patent, the generic will be cheaper...and covered,

      Canadadrugs.com shut down under a consent decree by which the FDA and DOJ agreed not to sue or prosecute them or their U.S. customers if they stopped shipping into the U.S. Because 90% of their business (pretty much their raison d'être) comes from the U.S., they decided it wasn't worth competing with other pharmacies for Canadian customers and thus went out of business. Wonder if CanadaDrugsOnline.com will meet the same fate.

      7 months ago
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