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    User: Moxie4ever

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    aedwards shared an experience

    Loss (Lost loved one): My husband lost his battle on July 30, 2015, a 5 month battle. I wish I had know about MD Anderson hospital a few months ago. Unfortunately, I only found out about them a few weeks before my husband passed away. They have Dr. Fung who is making incredible progress fighting Cholangiocarcinoma. I urge anyone who knows anyone fighting this cancer to contact them right away. For starters, University Hospitals did NOT do any type of genetic testing, nor freeze any of his biopsy. If they had, MD Anderson Hospital in Texas could have helped with his treatment. The end for my husband was terrible. I won't go into details unless someone specifically wants to know. My heart is broken

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    Oh No (Cancer has spread/Metastasized): It appears the cancer has spread everywhere. My husband has lost any desire to eat or drink. He has become very agitated and his is the kindest man you could ever meet, so this is not him. I called for in home nursing to bring hydration and his oncologist doesn't want to approve it. She simply said it is time to think about Pallative Care and Hospice. I called the on call doctor later that evening and insisted on hydration. He agreed. The nurses had a horrible time getting an IV in because the chemo damaged his veins and because he is dehydrated.

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    User: barryboomer

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    aedwards asked a questionBile Duct (Cholangiocarcinoma) Cancer

    How much information to share

    12 answers
    • cam32505's Avatar
      cam32505

      Your husband has a right as a patient and an adult to know about his illness. There may be things he wants to do or say before it's too late. I know you want him to have hope and there's always new and better treatments in the pipeline. I wish you well.

      about 4 years ago
    • amontoya's Avatar
      amontoya

      I was in your situation when I was the caregiver to my ex. He wanted to know nothing and wanted me to handle everything and have all the knowledge. For some reason, he could not wrap his mind around the facts and just didn't understand what was happening to him. I thought it was selfish and immature to burden me with everything while he ignored the facts. Eventually the burden was too much to handle by myself and we parted ways. He is still a train wreck but cured. Shielding him from the truth did NOTHING for him but make him a much more difficult person to deal with. This is your choice but I cannot understand why you would want to shoulder the burden alone?

      about 4 years ago
    • HeidiJo's Avatar
      HeidiJo

      You know him best and what is right for him. He may be in denial, and is dealing with it the best way he knows how. He probably does know more than you think. If planning a trip to Vegas helps him cope, so be it. It can help him deal with this whether he actually gets to go or not. Miracles happen every day. I was in denial when I was first diagnosed, I went around telling everyone I had Lymphoma with a big smile on my face like I was telling them I had a bee sting! Its funny when I look back on it now.

      about 4 years ago
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