• AlexisJ's Avatar

    AlexisJ asked a questionBreast Cancer

    Starting Chemo

    24 answers
    • Mimi19501's Avatar
      Mimi19501

      I was diagnosed with HER2 Breast Cancer in Dec,2016. My first Chemo was 02-13-17 but along with that my husband had to have a
      "Open Heart Double Bypass Surgery" on 02-14-17 the next day. I debated rather to have My 1st Chemo but I ask the Surgeon and he suggested that I don't cancel it cause my husband would be taken care off. So I went through with the treatment and was not their for his surgery. My daughter Facetime me with him before he went in. I am now going on my 6th and final Chemo next week and the break for 4 weeks the Radiation for 6 weeks (5 days/week) Will be over in mid August but still have my Herceptin Injection till February 2018 and then my follow ups from whenever.
      I was a nervous wreck, crying, emotional but my daughter was then and now a great help. I took it one day at a time but my sister was diagnosed with Ovarion Cancer 7 years ago but now it's just a matter of time she has left. She fought a strong battle and always had something go wrong but she was a survivor and has husband that would not leave her side. I believe that's what gave her the strength she needed the whole time to keep going. She gave alot of advise and I found it very helpful. Be sure and listen to the Dr cause I've already experienced twice what the Dr says and what the nurse says and it's two different stories. To me I think it's better to have someone go with you to listen just in case you don't catch it all the other person can. It's a lot of processing to deal with and it can be difficult at times. Be sure to keep a daily record if needed. I dipped my hands and also sucked on ice during the 4 hours of treatment and on the 5th I didn't. I noticed my fingers and feet were numb and no taste. It keeps it from going to those areas. I also take 3-4 days before treatment Clariton about 8-9 days straight to help with body flu like symptoms that I never got but with the first treatment which I only took it off 5 days. I experienced a pain on both front and back ribs that felt like it was in my bone marrow. Felt very different and was very uncomfortable but with the Clariton it HELPED.
      Take it one treatment a a time. You will get through this.
      Keep in touch.
      May God Bless you and your family,
      Mary

      3 days ago
    • Nanzee's Avatar
      Nanzee

      Forgot to mention the Claritin! My first Neulasta experience was terrible--nobody had warned me about the bone pain! I took Claritin for several days around all the others and never had a twinge. I guess word was just getting out to my clinic about that time. Some people still say they have some pain, but so far all I've heard is that Claritin really takes away the worst of it.

      3 days ago
    • AlexisJ's Avatar
      AlexisJ

      What time did you take the Claritin? My neulasta is at 7pm tomorrow. Should I take Claritin in the morning or right before the shot?

      about 14 hours ago
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    Question: Starting Chemo

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    Question: Cooling caps

  • AlexisJ's Avatar

    AlexisJ asked a questionBreast Cancer

    Cooling caps

    9 answers
    • 2943's Avatar
      2943

      HOW SUCCESSFUL ARE THE PENGUIN CRYLON GEL CAPS?

      Our clients’ results show up to 95% have successfully retained their hair and in excess of 95% say they would definitely use them again.
      This is what one brand claims. Again, check for clinical trials.

      10 days ago
    • DoreenLouise's Avatar
      DoreenLouise

      I met a woman who had breast cancer, received several months of chemo and did not loose her hair.

      10 days ago
    • jeallen's Avatar
      jeallen

      I used the Dignicap system (https://dignicap.com) last year - maybe the 6th patient or so after my oncologist got the machine, It is uncomfortable and expensive but may be worth it to you. With the Dignicap system you don't have to have a helper, rotate caps, or lug a cooler of dry ice to your appointment. It is supposed to work fairly well for TC but not nearly as well with Adriamycin so they usually discourage you from using it with that regimen. I did TC with the cold cap but when I finished TC we found that my cancer was more aggressive than first thought so I had a course of Adria as a single drug. They told me all my hair would fall out with the Adria but I figured I'd continue the cold cap and see what happened. Overall, my results were less than stellar but I'd probably do it again. With the TC I lost probably 40% of my hair, which was a disappointment, but new growth was filling in by the time I finished TC. I think that maybe I got a bubble under the cap since it was such a new thing for the nurse putting it on me. I also think that when the literature says you can take part of all your normal daily activities, they did not intend for me to go to the beach or blueberry picking with my kids in mid-July 95 degree heat and 90% humidity. I think I got too hot and perhaps dehydrated. My hair started falling out by the handful right after that, So I would be really careful about heat, sun, warm showers, etc. In addition, get a comb like the Conair Brush Detangling Comb. I also used Latisse to keep my eyelashes and eyebrows (off label use) growing during chemo. It worked very well with TC but after the first dose of Adria they all fell out within 24 hours. I kept using Latisse, though, and they were becoming visible again 6 weeks later. By the time I finished the course of Adria, I had lost probably 70% of my hair which was a huge disappointment but, surprisingly, no one noticed. I cut it fairly short, used scarfs, bandanas, hats, and a lot of Toppik (https://www.toppik.com). 6 months later I know it's still growing out but no one else would ever guess. The biggest benefit for me was not that I got to retain my hair but that I got to maintain my privacy. No one knew how sick I was when they looked at me. My husband really needed the illusion of normality and I think my 8-year-old son did too. The drawback of not "looking" sick is that you don't get much help (meals, etc.). A recent blog post you might find helpful: http://www.standup2cancer.org/blog/view/actress_jessica_st_clair_opens_up_about_her_breast_cancer_diagnosis
      My oncologist also taped cold packs to my palms and soles to prevent neuropathy. It worked like a charm.
      Best wishes to you. I hope all goes well. Feel free to contact me if you like. One last word of advice - if you use a cold cap, take a heated blanket along too. You'll be so much more comfortable.

      9 days ago
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    Question: AC-T or TC Chemo?

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    AlexisJ asked a questionBreast Cancer

    AC-T or TC Chemo?

    6 answers
    • AlexisJ's Avatar
      AlexisJ

      I am stage 2B with lymph node involvement. I had a lumpectomy and sentinel node biopsy. I have seen 3 different oncologists and have been told TC by two and AC+T by the other. I have been researching both chemo regimens, just looking for insight from this lovely community.

      11 days ago
    • Sheryl88's Avatar
      Sheryl88

      AlexisJ
      I am also stage 2b with lympbnode involvement. I had a bilateral mastectomy. My oncologist recommended AC-T as a precaution. We also followed with radiation. AC-T is definitely harder, but there are lots of things they can do to reduce the side effects. If it were me, I'd go with the oncologist you are most comfortable with. Then ask them the questions. Good luck to you!

      11 days ago
    • Dltmoll's Avatar
      Dltmoll

      I was stage 2a, no lymph node involvement, and was given the choice between TC and ATC. My case was reviewed by 2 doctors who told me that, in each of their opinions, recent studies were showing not much difference in results between the two regimens but less risk of side effects to heart and lungs from just going with TC, so that's what I chose. Of course, that can lead to second guessing yourself later, shold there be a recurrence. Did the doctors give you their rationale for recommending one over the other? Not an easy choice, but better if you know what the basis is for each opinion.

      11 days ago