• Ally113's Avatar

    Ally113 asked a questionBreast Cancer

    How to know if it’s back ? Would an MRI help?

    5 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Greg's right. Some insurance plans require a prescription or referral for diagnostic testing. And a lot of testing facilities won't do it without a dr's order. Plus some insurance planss require precertification, which means a doctor must show medical necessity for high tech radiology. You might want to give your oncologist a call, explain your concerns and see if they want to order some testing before you go in to your appointment. PS -- the insurance info is courtesy of the fact I work for a medical TPA and we have LOTS of plans that require authorization or claims won't pay. And MRI's can run a couple thousand.

      2 days ago
    • gpgirl70's Avatar
      gpgirl70

      Looking at your last two questions makes me want to ask lots of questions about your treatment etc, but ultimately I’m not a healthcare provider so that’s silly. I was stage IIIc and had 16 positive lymph nodes so locally advanced er/pr+ breast cancer. I had a bilateral mastectomy, chemo, and radiation. Many women go through this treatment swimmingly but I did not. I have been extremely fatigued, been depressed, anxious, neuropathy, lymphedema, joint pain... Treatment can leave one with lots of side effects and the AIs or tamoxifen have their own list of side effects. I used to be in a constant state of panic about recurrence. I have had an MRI since treatment because of chronic headaches. Turned out I was having stress headaches. If you have chronic pain, I would think either pc or onco would order an MRI. Just explain your symptoms clearly and the doctor will decide what’s best. I think it may be good to ask for the MRI so the doc can explain why or why not it’s valid. You know your body and that something is wrong so advocate for yourself. I wish I could get a full scan every year for peace of mind.

      1 day ago
    • TerriL's Avatar
      TerriL

      I agree with Greg, you are probably going to have to be referred by your pcp or oncologist.

      about 18 hours ago
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    Ally113 started following

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    Bwp wrote on Ally113's wall

    I have the same thing. The dr said it is adrenal insufficiency. Not sure what that means. He prescribed steroids.

    1 Comment
    • Ally113's Avatar
      Ally113

      How far out are you and what type of cancer? I don’t understand the steroid thing????

      3 days ago
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  • Ally113's Avatar

    Ally113 asked a questionBreast Cancer

    Extreme fatigue, sleepy, and parts of body from waist up including arms tingle or need to be popped?

    4 answers
    • beachbum5817's Avatar
      beachbum5817

      If I were you, I would make an appointment to see your doctor especially if this has been going on for a while now. I do get the "winter blues" this time of year, and I am more tired and less interested in doing things. However, I don't get the other problems that you describe. I think a trip to the doctor would help you. Take care.

      3 days ago
    • Bengal's Avatar
      Bengal

      I'm not sure I understand what you mean by body parts needing to be "popped". Like the Beachbum said, I too have been experiencing the winter blahs and have felt unusually fatigued lately but what you describe sounds more serious than that. I concur; talk to your doctor.

      3 days ago
    • gpgirl70's Avatar
      gpgirl70

      Have you been checked for lymphedema? I have gone through therapy for lymphedema and do exercises on a daily basis to prevent it. I also have a sleeve I wear if I started to feel pressure or tingling in my arm or if I fly. I’ve been fatigued since I finished treatment 4 years ago. I agree you need to call your onco or pc doctor. If it’s lymphedema you want to address it right away. Hope you feel better soon.

      3 days ago
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    Ally113 asked a questionBreast Cancer

    This is about the “Survivor “ question. Why are ppl usually told the 5 year Mark is the “ survivor title comes important??? I was told th

    18 answers
    • mytoby's Avatar
      mytoby

      Thank you Barbara, I spoke to a nurse practitioner, she said she would tell my nurse practitioner, who did not say anything to me when I saw her. I am going to an OT for lymphedema and for scar tissue building up, that is the most painful for me now, I feel worse now than I did a couple of months ago. I had no idea about the scar tissue build up and that it would hurt like it does. I feel like someone has punched me in the chest when I touch my chest. Have you experienced that? or have anyone of you had that happen? any suggestions? I bought some Palmer's cocoa cream and rub on it, and it does seem to help a little. The OT said for me to massage it when I can during the week and to raise my arm up as far as I can to exercise it, and gave me a pully to use to put over the door, and pull the rope from side to side to help with stretching my arm. Also, the numbness and hurting under my arm is still there and bothers me some days as the day goes on and I am moving around, maybe I have not meant to, but have used my arm too much. Also, she said don't lift anything too heavy with that arm, nothing over 2-3 pounds, that is hard to do, to remember when you are carrying groceries or things, as I always use my right arm more than my left. I am not planning on going in a hot tub or sauna, but I have heard that is something you should not do. Is that true? So many things to think about after the fact. How would I know if there is any cancer there still if my blood work comes back in the normal range, but my chest still hurts so much? could it be there, but not showing in the blood work? what other tests can they do to check to see if there is any cancer in your blood or lymphatic system? ex-rays? maybe a chest ex-ray? I wonder if that would show anything. Wish I knew a good nurse or someone in oncology to ask some of these things. Thanks for listening, it helps to write this down. God bless you all.

      11 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Mytoby, I'm sorry, I had a lumpectomy, so can't advise you on the medical questions. You shouldn't have to "wish for a good nurse" to ask your questions----you already have your Oncologist and his nurses to ask questions of. It's their office's responsibility to answer your questions related to your cancer, so ask them until you get an answer. If it's a hectic office, they probably just forgot to call you back before.

      Make a list of questions before you call. Also ask for a referral to a counselor for depression/anxiety and a support group for information.

      I don't know about mastectomy patients, but other breast cancer patients are monitored by mammograms and chest X-rays at regular intervals.

      Best wishes for feeling better after your questions are answered, and your depression/anxiety is addressed. Call them today and you'll feel better fast!

      Happy Valentine's Day! Take your husband to lunch!

      11 months ago
    • petieagnor's Avatar
      petieagnor

      @Ritasuzi, that is what happened to me. My oncologist never mentioned anything about MBC. I took my little pill for 5 years. At 10 years exactly, I got MBC in my lung. Very, very small, but I still have to keep it from spreading. At 8 years, I gave away all of my hats & scarves. I just had to make more. I'm not donating any of these. In 3 years I've lost my hair twice.

      10 months ago