• amiehood's Avatar

    amiehood wrote on shewiz9960's wall

    My dad was diagnosed with Cholangiocarcinoma in October of 2011 at the age of 47. It was non resectable and localized to only the bile duct. After he did a round of chemo and radiation 5 days a week for 6 weeks, they did a PET scan and found that it had spread to his lymph nodes. He went through another more intense chemo regime of infusions two mondays in a row and then off for a week. This lasted about 3 months. After another scan they found that it had spread to his stomach also. He attempted to try another chemo yesterday, but it had such a reaction that it caused him to lose his sight and ability to speak for about an hour. (very scary and not typical) We are now facing the fact that he will stop all treatments and live the rest of his life out the best that he can. It is tough to handle and if there is anyone out there who has any suggestions or tips on how to handle this, I would appreciate any feed back. We are trying to stay positive, but it is tough.

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    • Bellamore's Avatar
      Bellamore

      I also have inopeable cholangiocarcinoma. I am being treated with an implanted heatic artery chemo infustion pump in combination with systemic chemo.
      I've had some mets travel to my lymph nodes but they have responded well to the chemo.
      The chemo i am taking systemically is gemzar. I have no adverse reactions to it.
      If possible, get yourself to Memorial Sloan Kettering Hospital in NYC, This hepatic artery infusion pump saved my life. It is keeping my cancer at bay. Ask to see Dr. Nancy Kemeny. Good luck.

      almost 4 years ago
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