• amkates' Avatar

    amkates shared an experience

    Milestones: I have figured out that I need to make me comfortable and quit worrying about everyone else. I needed to be needed but now I need to ask for help. My journey is coming to an end but the trip is just beginning. I have not been having the best of time lately because I have decided that if I let others help me it makes them feel less helpless so I guess I am still needed

    3 Comments
    • DaveWaz's Avatar
      DaveWaz

      Bingo!

      about 3 years ago
    • maryjimhath's Avatar
      maryjimhath

      It really does make others feel better if you allow them or tell them something they can do for you. Just think how good it makes you feel to help someone else. I know it's hard to think that way when it's your self. Hope you feel better soon. Will be thinking and praying for you.

      about 3 years ago
    • maryjimhath's Avatar
      maryjimhath

      Been thinking about you and hope Hospice has still been able to give you and your family what you need. You've been a very brave person. God bless you !

      about 3 years ago
  • amkates' Avatar

    amkates shared an experience

    Symptom Management: They have upped my medications to keep me comfortable but it has left me feeling in a fog and I don't like it. When my nurse came on Friday she said I need to be patient that it may take a couple of days for me to level out on new dosage. I told her I don't like waiting but she explained it has only been two days, I had to laugh I thought it was at least 5 days I told you I was foggy.

    1 Comment
    • Lirasgirl33's Avatar
      Lirasgirl33

      Thank you for keeping us posted. I'm glad they are keeping you comfortable and hopefully that "foggy" feeling lessens. Sending hugs your way.

      about 3 years ago
  • amkates' Avatar

    amkates started following

    User: ladyc

  • amkates' Avatar

    amkates wrote on PhotoWacko's wall

    I see you were diagnosed 8 months ago my too. So we can walk this journey together. I have found so much great information on this web site from others and the doctors updates. Do not hesitate to ask question or read the questions other's have had. Keep the faith and good health to you.

    2 Comments
    • PhotoWacko's Avatar
      PhotoWacko

      Thank you for your note. Frankly, I am finding this site a bit difficult to navigate. Since I have cancer in so many places, it has become a bit overwhelming for me to find the info that I need. I wish you the best.

      about 3 years ago
    • amkates' Avatar
      amkates

      i did as well, just ask and I will be glad to help you navigate where you want to go. And your right it only recognizes my lung cancer but not my bone cancer (even if that is not primary) it is the tumors that have given me the most pain and problems. Don't give up and keep the faith, I will help in any way I can and maybe we can learn somethings together.

      about 3 years ago
  • amkates' Avatar

    amkates asked a questionLung Cancer

    Are you nervous about having Hospice or concerned it means giving up?

    4 answers
    • FreeBird's Avatar
      FreeBird

      Starting hospice early was the best decision for my dad, when his cancer progressed and there were no more treatments for him. We weren't sure what to expect. It improved his quality of life, helped me to care for him with the right tools, and I believe it helped him live longer than he would have without it. The nurses stated that it can make a difference in longevity. Wishing you and your family the best, amkates.

      about 3 years ago
    • cam32505's Avatar
      cam32505

      I think most of us who have been through hospice with a friend or relative see it as finding some peace when there has been so much pain. They calmed my mother down so much, as she was nervous all her life. If you've been treated for cancer, hospice doesn't mean giving up. You are seeking pain relief.

      about 3 years ago
    • maryjimhath's Avatar
      maryjimhath

      I lost my mom to cancer 5 years ago and we brought her home and had hospice at home. The nurses and everyone were so wonderful. Not only to my mom, but to me and my dad also. I also lost my husband Feb. 22, 2013 to Alzheimer's and my son called hospice in 2 days before he pasted away. My husband and I had moved in with my dad because I have stage IV lung cancer and was taking chemo and my husband was at the point that I could not take care of him and myself alone. My hope is when the dr says no more chemo or my body says no more, that I can go to a hospice home. After being with my mom and my husband, I know they will not let me suffer. I guess that's what we are all afraid of, that death will hurt, but that is what hospice does. Makes sure you do not hurt but can go in piece. God bless you!

      about 3 years ago
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    amkates started following

    User: Jazzygirl