• Amy's Avatar

    Amy started following

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    Amy asked a questionNon-Hodgkin Lymphoma (NHL)

    Second opinion in childhood astrocytoma brain stem tumor

    • po18guy's Avatar
      po18guy

      I would go to a large, regional research and treatment facility that offers clinical trials as part of their daily operation. Think MD Anderson, Memorial Sloan Kettering, Dana Farber or Fred Hutchinson. Some travel expense and inconvenience are well worth the hope that might very well be provided. At this point, there is nothing to lose with a second opinion, and everything to gain.

      about 4 years ago
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    Amy wrote on tslager01's wall

    Non Hodgkin lymphoma primary mediastinal large B cell lymphoma. It is a wonderful group. Wish I had found it while I was in treatment. Sounds like you may be towards the end of Rchop. Most people only have 6. I had 8. Was stage 4b when diagnosed. Hang in there. God bless

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      Amy

      Or twds end of EPOCH?

      over 4 years ago
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    Amy wrote on tslager01's wall

    How are you doing? I had the same type of NHL as you. There is also a facebook group for our type. Hope things are going as well as can be.

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    • tslager01's Avatar
      tslager01

      Amy - I have made it through five rounds of chemo. What the Facebook page so I can join it?

      over 4 years ago
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