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I came home from my auto BMT about 2 weeks ago and am finally starting to feel better. I still can't go out into crowds or anything yet, but I can got up and down my stairs without getting out of breath and I actually did a load of laundry yesterday! I'm hoping to try to get outside and take a walk (just down the street and back) once my hubby gets home from work today since it's the last day of our "indian summer" today. I find out if the bmt worked and the NHL is finally out of my hip muscle (psoas muscle) and out of my hip bone at the end of November. I hate how long you have to wait for a PET scan to see if treatment worked. ARGH! But I have positive thoughts and I know I'm going to get rid of this!!!!!! And let me just say....after 10 months of being bald I've gotta say I'm pretty sick of it! I want my nice warm head back! ;)
Hey Amy-- It's so awesome that you're back home! How long were you in the hospital? Did you have BEAM chemo too... or just R-ICE? I am about to start R-ICE soon too in hopes of an auto transplant!
Thanks for sharing your story, and I hope you get great results from your transplant :)
Thank you for posting on your progress. You are doing so well, you are an inspiration to the rest of us. Keep up the good work!
Procedure or Surgery (Auto Bone Marrow Transplant): Just home from the hospital a week ago. Still tired and have no energy. But doc says my blood levels are coming up nicely. Don't have a scan to see how/if it worked for another 45 days. Ugh.
Procedure or Surgery (Implant chemotherapy port): Central line catheter placed on the opposite side of the chemo port to harvest my bone marrow and to give the chemo during the transplant. Received one more round of RICE during this hospital visit to hold off the lymphoma until the transplant.
