• angelap's Avatar

    angelap started following

    User: Cheese

  • Carool's Avatar

    Carool wrote on angelap's wall

    Hi, Angela! I know you're finishing up chemo!!! So, how're you doing? I know you'll have radiation next. Sending you more hugs from Brooklyn.

    Carol

    6 Comments
    • Carool's Avatar
      Carool

      Hi, Angela! I'm so glad that you didn't have that awful bone pain towards the end of your chemo. And it's buh-bye to Mr. Neulasta (and please don't return!).

      I'm happy I was/am a good role model for you! As you know, it's been 18 years since my diagnosis (it'll be 18.5 years on November 5, Guy Fawkes Day - I loved Mary Poppins as a child, the REAL, acerbic Mary Poppins of P.L. Travers, not the saccharin Disney version). Where was I? I didn't even get Herceptin, as I may have mentioned, as back then only women with stage 4 b.c. were given Herceptin (at least at MSK).

      Re the radiation simulation - When I had it, women were irradiated while we lied on our back. I've heard that nowadays, at least some women can lie on their stomachs with their breasts in cups in the table, and the radiation is given through the cup. This protects the heart, if it's the left breast being radiated, and protects the other structures around the breast (I guess bones, etc.).

      If your radiation will be with you on your back, the simulation should take about an hour. No pain, but you'll have to keep your arm in position for awhile. However, maybe everyone is different in this, as I assume everything depends on just what area of the breast is bring irradiated. Maybe you've learned all about this anyway.

      You'll probably also get tiny tattoos around the breast and nearby areas. They are painless and tiny. My only tattoos! I COULD'VE lived happily without them, though....

      Well, good luck on Wednesday, Angela.

      Hugs,
      Carol

      6 days ago
    • angelap's Avatar
      angelap

      Hi Carool!

      I was very happy that awful bone pain from Neulasta only lasted for a few treatments, then got a lot better! I had some bone pain, but not much of an issue at all, thank goodness!

      18 years! So happy for you, I'm sure the stage (IA correct? me too!) did help play a role as well. Not sure how good Herceptin is in the long run, at our early stage, maybe it really doesn't do a heck of a lot. Well, I'm in the midst of it now, so guess it continue until it is done, 18 treatments total which is about a year. My 7th one is on Halloween day, LOL. It only takes 30 minutes for that infusion.

      I do go in next Wed for the radiation simulation. Interesting about the breast cups and lying on the stomach! That is how I received my breast MRI before. But for my radiation (right breast) I was told I would be on my back for it. In the future, my right lung MAY show a shadow or a small dark spot on CT scans or MRI's or x-rays and I was told to tell a future radiologist that it is due to my breast cancer radiation but not a problem with the right lung. I love the idea about the cups, I will have to ask them when I go in on Wed, their opinion on that and why they don't offer that. I was told my simulation would take an hour and I would have to lie still for quite awhile, so make sure to tell them if I am uncomfortable. I will also get some tiny dot tattoos, hoping I don't really notice them though!

      I will let you know how it goes then! Thanks for writing me, Carool.
      Hugs! Angela

      2 days ago
    • Carool's Avatar
      Carool

      Hey, Angela! Again, good luck with the (annoying) simulation. Your arm will be a bit awkwardly positioned, as you can surmise, but it's no big deal. And I doubt you'll notice your tattoos! They are tiny.

      I didn't know or remember that it's your right breast, not the more common left. Well, at least your heart won't be affected at all. And it's rare that anything will be harmed by our kind of radiation.

      Again, good luck on Wednesday. Let me know.

      Hugs, Carool

      about 23 hours ago
  • angelap's Avatar

    angelap started following

    User: Kendra

  • Carool's Avatar

    Carool wrote on angelap's wall

    Hi, Angela! So, did you have your fourth chemo? Getting close to the finish line for that! Before you know it, you'll be done with all of it. Hugs, Carol

  • angelap's Avatar

    angelap started following

    User: Camarillomom

  • angelap's Avatar

    angelap started following

    User: SueRae1