• angie's Avatar

    angie posted an update

    I want to know when Kansas CIty Missouri will be having a Relay for Oral Cancer Awareness...We Need One:) Thanks Everyone!!!!!!!!! :)

  • angie's Avatar

    angie posted an update

    I am nervous and wonder how long the surgery will be, and if they are going to have to put a trach in......

    I dont know anymore...just know God will have my hand in whatever happens

  • angie's Avatar

    angie shared an experience

    Procedure or Surgery (Surgery): My surgery is scheduled for November 2, 2012 and afterwards I will update you on the rest of these questions...

    They say theyre going to take a large portion of my tongue and then, they will take out lymph nodes out of my throat, and finally they will remove all of my teeth......And..during the procedure if they see swelling they might have to trach me.....so we will see the results come next week..

    Ive got to work the whole week until the day of surgery so I will not miss any paychecks or possibly get fired...

    1 Comment
    • FreeBird's Avatar
      FreeBird

      Holy cow. That's something else. Our hearts go out to you Angie. I can only imagine how you must feel. I hope you're finding all the resources you need.

      over 4 years ago
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    angie posted an update

    FreeBird, My family is about to cause me to have a nervous breakdown here.....they expect me to know all the answers and who is going to what and when and where and all that already...I only found out for sure on Friday I had the darn cancer....

    All they make me feel like is crying in anger.. I am comfortable knowing I have cancer, I am at peace with myself and God and I know he will guide me through others like you to show me the right paths to take with this cancer. But somehow my family doesnt get it how I can be so darn calm about it all...

    I just need silence to think and call the numbers and sources that I was given....then I might have answers for them...

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    angie shared an experience

    Oh No (Diagnosed): I was having problems with my teeth and a filling had fallen out of my mouth and then a sore spot formed on the side of my tongue. I unkowingly just thought it was the broken tooth scraping the tongue causing the pain. Then one day I really looked at my tongue and this thing looked weird, and just as weird at work that night I found a book about oral cancers and what they look like but I said to myself...thats not me!!!
    Finally got too painful and went to oral surgeon and removed the tooth, he was very concerned with the look of the sor ein my mouth he said we urgently need to do a biopsy..I immediately Knew I had cancer... I knew it..God gave me a weird feeling and I was at peace with it. The surgeon did a biopsy the same day as the tooth removal and then I waited a week for the results...
    The results came in as a Squamous cell carcinoma- well differintiated...

    I was numb...WHY??? Because my world was falling apart right then with the realization I have No Health insurance! So what am I going to do, this sore in my mouth is getting bigger and it is hard for me to swallow and talk at times.
    Im scared to get alot of bills and I cant pay for them. I am so scared of this thing growing larger each day but I cant get ahold of a single person that sounds like they care...all I get is..You dont have health insurance!!!! Ohh mY!!!

    More to come as the days go by take care!!
    Angie

    2 Comments
    • angie's Avatar
      angie

      I forgot to mention, I am scared as XXX ..

      over 4 years ago
    • FreeBird's Avatar
      FreeBird

      Also, get to a social worker at your hospital or cancer center. They may be able to help you navigate through the resources to find something that works for you. Remember that there are millions of people who do care, and that you are not alone in your experiences.

      over 4 years ago
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    angie started following

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