• AngieJ's Avatar

    AngieJ started following

  • AngieJ's Avatar

    AngieJ posted an update

    I have had 3 ostomies since July 2011 initial surgery#1
    #2 November/Dec 2012 revision stricture
    #3 Nobember 2013 revision stricture/hernia repair
    I am worried this revision wil be every year
    The ostomies are all in The same place ,never can be reversed since 1 tumor was 3-4" from bottom of rectum

    1 Comment
    • CrazyHarry's Avatar
      CrazyHarry

      My wife had out off control colitis ans had a terrible time with multiple surgeries, pouch problems, etc. she hung in there for over 5 year and final West permanente On the ostomy. Best decision she ever made. Freed her from all of the problems. Been 10+ years problem free.

      almost 3 years ago
  • AngieJ's Avatar

    AngieJ posted an update

    Colostomy irritated ,bleeding a bit around skin ,made appt.. ostomy nurse ant see me until next. Wk, I told her my prob
    Em & she left me 2 Aekins rings ,they are helping but I will still follow up with appt

    2 Comments
    • CrazyHarry's Avatar
      CrazyHarry

      Eakins rings are the best. Tried some other brand and wasn't as good. Looks like you are on the right track. Btw, both my colon-less wife and daughter swear by them.

      almost 3 years ago
    • ruth2's Avatar
      ruth2

      I had same problem. Used prep proteciive skin barrier around stoma and Brava powder on top of that. Doctot suggested changing bag more often. I do that and irritation is gone for now.

      almost 3 years ago
  • AngieJ's Avatar

    AngieJ shared an experience

    Other Care (Dr did not heckle me he checked me,lol have to laugh @ spell check)

  • AngieJ's Avatar

    AngieJ shared an experience

    Other Care (Ct of chest next wk ,): If nodules haven't grown ,then it probably not metastasize

  • AngieJ's Avatar

    AngieJ posted an update

    Unable to have intercourse 2012. Surgeon heckled me said I could. Not ,it felt like salt in a open wound when he checked ,spoke to oncologist later that yr he said I have sevral tiny tears probably due to radiation,options of ring to dialate, dr said he would speak to my oncologist, this never happened saw my gI Dr. He said there is another option surgery but you would need "right dr." Later in 2013 appt with oncologist had a gyn/oncologigst in office. I ended up canceling due to a procedure ,when I had my colposcopy/egd he checked my os & when I awoke from anesthesia I hurt there ,me & my husband have been together for close to 23 yrs & we discuss this ,& okay without further tx.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Sorry for your condition and side effects. Keep after the doctors to see if they can find a relief for you.

      almost 3 years ago