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    Applegirl shared an experience

    Symptoms: I have suppressed immune system due to chemo/radiation treatments. I was told that would only last approx 4-6 weeks and I would be back to normal....NOPE! Finished treatments end of June 2007. Get infections easily and takes several months to finally get over what was causing the illness, etc. I have been getting a bacterial infection and not able to get over it. Have been to several Drs, Specialists. They said intestinal. Okay, really? Since December? Several rounds of Levaquin, high dose for 10 days each time. Would feel lots better for around 4 weeks and started getting run down and another bacterial infection! I take Ibuprofen 800mg 2 to 3 x daily for chronic pain I am in since treatments among other meds. Long story short, two weeks ago my 8 yr old Autisic son, who is quite brilliant and on an adults level of conversation, asked me exactly where my pain was radiating from. I told him around my right ear area and under my ear area and I have lost partial hearing in my right ear. Drs kept blowing that off saying that is not the problem, that is from sinuses. I don't have sinus issues! I have Severe Asthma...they call it COPD/Bronchitis. On all kinds of meds for that as well as for my lower back and hips, chronic pain! Caused from treatments. Anyway, my son closed his eyes, put his right fingers under my right ear, ran them down my right jaw area to the bottom of my right jaw and I nearly jumped off the couch from the nerve pain he hit with his fingers! My son told me to open my mouth, he loves flashlights, he looked in my mouth on the right side and said "Momma, I don't want to sound mean and hurt your feelings but your back gums around your back teeth look real yucky and gross and it has pus in it. You need to go to the doctor right away or go to the ER real bad Momma. It doesn't look good back there!" I told my son I think I have Ben trying to cut my Wisdom tooth and that is why it has been hurting for last several months. I got up, looked in mirror and thought I was going to pass out! Wisdom tooth already totally in, bad infection behind wisdom tooth! Went to dentist next day. Told me bad bacterial infection in pocket behind Molar, told dentist not a Molar, those pulled when child, wore braces, too many teeth for my small mouth. He scraped and cleaned, put me on antibiotics and antibiotic mouthwash, told me chemo/radiation KILLS Salivary Glands, leads to Peridontal Disease, looks like what I have on that side due to DRY MOUTH. That part finally cleared up BUT along my gum line and down right jawbone, it still hurts! I floss, bleeds between each tooth and not pretty. Anybody else going through this? Oh, and under my crown where I got root canal 3years ago, HURTS.

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    User: geekling

  • Applegirl's Avatar

    Applegirl shared an experience

    Other Care (Psychosocial): I was always a very out going person, a social butterfly, if you will. The Chemo/radiation affected my memory to a certain degree, it causes lasting brain fogginess that the Drs also tell you will not last, depression, lasting fatigue I still suffer from, etc. the Radiation affected my S-1 the worse, I have chronic back pain, my hips are in constant pain, i have atropy in my left calf, and my legs are weakened from my hip/lower back pain. I developed COPD two years ago from the treatments and after my chemo/radiation treatments where finished the end of June, the Drs ordered CAT Scans, MRIs, numerous testing was done. MRI results showed my lungs where the healthiest, pink in color and looked like that of a 16 year old non-smoker in 2007. In Feb 2009, I was rushed to Hospital, oxygen SAT levels at 84, on breathing treatments for one hour, wouldn't raise, was hospitalised, had severe bronchitis I wasn't able to get over with antibiotics, steroids, etc and was diagnosed with pneumonia and the Swine Flu. The team of Drs working with me told my husband if it had been 45 minutes longer before I was rushed in, I would be in a pine box, not in the hospital. I told the Drs at the Hospital, I had just been to a Pulmonary Specialist a week before and he said I was fine! After numerous testing, scans, MRIs, etc, I was diagnosed with COPD/bronchitis with Exercise Induced Asthma from the effects of the Chemo/Radiation.

    2 Comments
    • geekling's Avatar
      geekling

      I'm just learning about all this. 10 years later, I did not know where to blame the fog or understand my problem with drawing big breaths. Hugz ... scary.

      over 3 years ago
    • Gemlady's Avatar
      Gemlady

      My Hubby died the year before my cancer diagnosis right in the middle of my having both hips replaced. I went undiagnosed till I was stage 3 N-1. 5 years later: hips hurt ALL the time: can barely walk. Chemo caused heart attack, heart wall has thinned. Breathing problems, edema in both legs, then the depression hit hard and fast. Still with the chemo brain! Got a good mental health councilor. Went for physiotherapy, didn't help. INCONTINENCE big time. This whole trip down the cancer road has been unpleasant, inconvenient, not the way I wanted to spend my "golden years".
      So: I mentor other cancer patients, do transportation, provide a shoulder to cry on, and ears to listen. I help change dressings with-in reason. I make phone calls. I DO NOT share the bad stuff, we are all different, our cancers and side effects are different as are our personalities and abilities to cope. I joined Hospital Committee so they can get feedback pro and con. I hug and encourage my women (and men) friends as much as they will let me without being intrusive. These things give me a "purpose." These things also help ME fight my depression. Win-win.
      Hang in there, try to stay positive, be happy you have a support system. I didn't. So I am making my own.

      almost 2 years ago
  • Applegirl's Avatar

    Applegirl shared an experience

    Radiation (Radiation and chemotherapy together): Anyone who has had Radiation "down under" knows how you become literally raw, burned, etc and the effects the Radiation does to your outside along with the inside of your intestines! Not a pretty picture and has lasting effects for years.

    3 Comments
    • geekling's Avatar
      geekling

      Really so very sorry for your trials. Until coming onto this site, I thought they had just been especially mean and careless with me.

      over 3 years ago
    • LUBI's Avatar
      LUBI

      Reading this made me more scared

      over 3 years ago
    • Gemlady's Avatar
      Gemlady

      Treatment is a XXX, but 5 years later I am still in remission. But still dealing with long term effects of treatment. Doc says "Learn to cope" he's a jerk." I need new Oncologist and better survivorship program. Not a happy camper: incontinence coupled with depression and major anger issues re.: incompassionate docs.

      almost 2 years ago
  • Applegirl's Avatar

    Applegirl shared an experience

    Drug or Chemo Therapy (Nausea medicine): Chemo made me so sick and weak, couldn't hold anything down. Ended up in Hospital so sick, weak and dehydrated. Wasn't able to start Radiation treatments yet.

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    Applegirl shared an experience

    Drug or Chemo Therapy (Medicine for low white blood cell count)