• chiefomni's Avatar

    chiefomni wrote on AshleyM's wall

    I am an esophageal cancer stage III survivor of 20 years. I have been through Chemo, radiation and surgery. We created the Esophageal Cancer Education Foundation (ECEF) www.fightec.org in part to help patients with their journey through this disease.

    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get it at any book store.

    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue. Calls are in the evening at 8:00PM (EDT).We have two Thoracic surgeons that attend each meeting Go to https://fightec.org/services/ get more information. You can send me an email at [email redacted].

    We also have a conference call support group for recurrence and stage IV patients. This group meets on a monthly basis and we have a medical oncologist that joins each call. If you are interested please send an email to [email redacted]

    We also have a 24hour hotline to help with quality of life questions as well. The number is on our web sitehttps://fightec.org/services/
    We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

    We look forward to hearing from you
    Take care and stay safe.

    Bart Frazzitta
    President

  • AshleyM's Avatar

    AshleyM asked a questionEsophagus (Esophageal) Cancer

    COVID-19/Christmas/Missing my Dad

    13 answers
    • Teachertina's Avatar
      Teachertina

      It’s hard to sacrifice this special time with family but it’s better to do that in order to have special times again later. I agree with all the above mentioned ideas. Both of my husbands parents are fighting COVID right now. They are 88 and 89 years old. We missed having Thanksgiving with them and don’t know if we can visit them for Christmas. We are waiting for a negative test tomorrow to see what we can do. They seem to be getting better but we are still worried about them getting fully recovered. It’s a tough virus to beat! Wishing you and your family well during all this!

      2 months ago
    • alivenwell's Avatar
      alivenwell

      I forgot about Skype. It runs on Android, Microsoft PCs, iPhones, and iPads. It is also free.

      2 months ago
    • legaljen1969's Avatar
      legaljen1969

      @AshleyM, I hope you were able to find a way to communicate or see your family over Christmas- at least virtually. We did a virtual Christmas meeting with my family. It turned out okay. It was probably as well as Christmas would have turned out, and when we signed off- we all got to go on about our days. LOL
      I won't lie. It was super hard not being there to have that in person time. I think there comes that time when we wonder, especially with aging parents and those who have chronic illnesses, how much risk is too much risk.
      I think maybe this Christmas has let a lot of families understand what families of immunocompromised people have been through in the past- those with cancers or other diseases that cause immunodeficiency. These are hard decisions to make.
      Anyhow, again I hope your family was able to make the decision that was best for you all.

      2 months ago
  • AshleyM's Avatar

    AshleyM started following

  • AshleyM's Avatar

    AshleyM shared an experience

    Procedure or Surgery

  • AshleyM's Avatar

    AshleyM shared an experience

    Oh No (Just Diagnosed)

  • AshleyM's Avatar

    AshleyM started following

    User: ColbyR