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    attypatty asked a questionBreast Cancer

    Anyone taking Verzenio or Ibrance

    31 answers
    • pianoplayer's Avatar
      pianoplayer

      Bebebeth Faslodex is the painful shots that goes with Ibrance. what a differance a hospital makes giving them. First 8 was a upmc hospital in Natrona Heights until I returned to my local hospital in Kittanning . Those girls know how to give the shots. I think upmc enjoyed hitting the bone every time or the nerve but I dreaded them so until I found nurses who are caring.They also dont charge as much copay.They help so much more than upmc with everything.

      over 1 year ago
    • RenieKelly's Avatar
      RenieKelly

      I was on Fosamax with Faslodex from 2012 until 2020. I have been on Verzenio for a little over a month. The diarrhea is horrible and that started around the 3rd week. I take 2 immodium at bedtime and this seems to help. I also take an antiacid during the day if I have stomach cramps. When getting my Faslodex shot, I find out which side is getting the shot 1st then put all of my weight on the opposite side and lean over forward. Try not to have a conversation as the needle seems to move when I'm talking or the nurse is talking. Also, when I get home I take a walk. This seems to help the swelling go down. Grateful for finding this site and able to speak with many warriors going through the same as me.

      6 months ago
    • DaviesR's Avatar
      DaviesR

      In answer to having taken Verzenio or Ibrance, I was on Ibrance for close to 2 years and I tolerated it very well (started with Ibrance/Letrozole and was switched to Ibrance/Faslodex). Verzenio was not effective for me after just a few months. While I was on Verzenio, I did vomit rather frequently, it was very unpleasant. Be careful, everyone, re Xgeva or bone shots. Please make sure you're not on it for too long, depending upon what your oncologist thinks is best! Good luck.

      6 months ago
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    attypatty shared an experience

    Celebration (Brain scan results): No mets to the brain!

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    attypatty shared an experience

    Side Effects (Diarrhea): Diarrhea and nausea and vomiting from the Verzenio. A new med meant to shrink tumors and delay progression. Lofty goals but hard to take.

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    attypatty shared an experience

    Procedure or Surgery: Spine surgery to remove the tumor at T-6. 8" incision, 6 hour surgery, spine fused with 8 screws and 2 7" titanium rods from T-4 to T-8. My surgeon asked me how I was walking around. The answer was I didn't know I had a tumor!