• DaviesR's Avatar

    DaviesR wrote on attypatty's wall

    Hi, yes, please share what side effects you are referring to...I may not have a choice and will likely have to switch from Ibrance to Verzenio, so I am very interested in what side effects you are experiencing. Hate to ask, because I know you said the side effects are terrible.

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    attypatty asked a questionBreast Cancer

    Anyone taking Verzenio or Ibrance

    13 answers
    • JaneyG's Avatar
      JaneyG

      I have been taking Ibrace and Letrozole for two and a half years. I have had many good days and very few bad days. My side effects have ranged from mouth sores in the early days to stiffness when I stand. I have also experienced neurapathy in my hands and arms, which I just rub peppermint oil on and it seems to help. When I have fatigue I just give into it and nap. I really am amazed and grateful that I have responded so well to this medication but feel sadness for the other women who are struggling with treatment. Cancer is not fun and there are days (my few bad days) when I am reduced to tears.

      about 1 month ago
    • DaviesR's Avatar
      DaviesR

      Hi, there. Metastatic breast cancer in my bones, diagnosed at the end of December 2014, after original, primary breast cancer found in June of 2000. I was on Ibrance/Letrozole for about 1 year (started Ibrance as soon as it was FDA approved) since diagnosis of metastatic breast cancer. After about a year, my markers jumped up and I was immediately switched from Letrozole to Faslodex shots and, subsequently, tumor markers lowered significantly for months. Now that my tumor markers have been on the rise each month for quite a few months, my oncologist wants to switch me to a Verzenio/Faslodex regimen. I'm concerned, because there is no guarantee that the Verzenio will work as well as the Ibrance (until it became less effective), or even work at all, and my side effects have so far been manageable. Although my tumor markers have been rising, there is no change in bone scans and PET/CT scans...had those two scans again yesterday and the day before, now waiting for results. It seems my moments of anxiety are worse than the typical side effects of the Ibrance/Faslodex regimen, but I work hard to get into a more peaceful state of mind. I'm wondering if anyone has switched from Ibrance to Verzenio and might have any comments. Thanks!!

      26 days ago
    • fluteplayer's Avatar
      fluteplayer

      How does anyone stand the painful shots?And to think I pay 398 a month to be in pain from them.compared to having your nails pulled out.They say they have to get in the muscle Only time I wished my butt bigger...Not working anyway as new tumors and tumor markers kept rising

      26 days ago
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    attypatty shared an experience

    Celebration (Brain scan results): No mets to the brain!

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    attypatty shared an experience

    Side Effects (Diarrhea): Diarrhea and nausea and vomiting from the Verzenio. A new med meant to shrink tumors and delay progression. Lofty goals but hard to take.