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    avonlea02 started following

    User: CancerNews

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    avonlea02 wrote on MelissaJ's wall

    Hi, Melissa. I am honored that you have chosen to follow me. I have been "quiet" on the site for awhile, due to having a very large hernia repair in mid-April. I have been healing slowly and painfully since then, but "coming out the other side", for sure! I plan to become "active" on this site again, and have a lot of positive determination to offer! I am here for you, as are others on this site. Please feel free to get in touch, and know that I will pray for you. Prayer, positive energy, optimism - huge attributes in beating this monster, don't you think?!! Hugs to you, Sister!

    Linda

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      MelissaJ

      Ugg ! I had a hernia repair right by my belly button about 3 years after my hystorectomy. Did too much while recooping, lol !! And that was worse than the hysto surgery. I feel for you !!! I hope you are feeling better all the time and will be like new before you know it ! Thank you so much for all the positive energy !! I need it all right now. Surgery is scheduled for July 8th. And chemo again 4 weeks after that. Love to chat when ever you can !! Hugs to you also !!!

      over 2 years ago
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    avonlea02 wrote on kalindria's wall

    Thank you, Kalindria, for following me; I hope I do not lead you into a wall - blind leading the blind style, so to speak!!

    But seriously, so many on this site have helped me, and I am so grateful for the overwhelming gifts I have been given through cancer; love, friendship, support, help - the list is endless! I feel that I have so much to give, "paying it forward", that I cannot repay! But I will share the love and joy that I have found through cancer. Isn't that bizarre?! Finding JOY through cancer? Chemo brain MUST have attacked whatever brain cells were left unscathed! But it's true!

    Anyway, we are about the same age; we share a similar disease, and I also received taxol and carboplatin. I'd be interested in hearing your story; how you dealt with it.

    Be well. My faith is strong, and has gotten stronger through this fight. May God, the Universe - whatever Higher Power you believe in - heal you and protect you!

    Love to you, sister survivor!

    Linda

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    • kalindria's Avatar
      kalindria

      I followed you precisely because of our similarities. Hope you don't mind. :-)

      So far, this has been an interesting journey for me. Chemo wasn't at all what I expected - much easier. Surgery was a breeze, but I've had a few surgeries and I heal fast so I expected that. Now I'm doing more chemo and I kinda feel like my oncologist is changing the game on me, saying she wants to do more chemo after these rounds when I expected to be getting checked every three months. I understand intellectually but I was looking forward to a vacation from chemo as well as a real vacation.

      When I was first diagnosed, I said nothing to anyone except a few friends and family. My daughters live close and are a great support. I have a job I love in a competitive field and fully expected to go back to work (I'd planned to be back by Fall 2014) and didn't want anything related to cancer to show up on my social media sites or be watercooler talk at work. I'm also the president of my national dog breed club and I kept my diagnosis from all but my Board of Directors. As it turns out, I will probably never go back to work - that's a huge adjustment for me and I'm still dealing with it - so last month I announced my news on Facebook.

      I could never have guessed the overwhelming waves of support, love, well-wishes and virtual hugs that came my way. Now I'm offering up commentary on my journey and experiences on Facebook and it's been so freeing for me. I also inspired one virtual friend with a family history of BRCA to go to the doctor for the first time in 15 years. Thank heaven her mammogram was clear, but I am grateful to have been the catalyst for her visit. This made telling my story more worthwhile than I could ever say.

      I love your attitude and would love to hear more about your journey (now that I've bored you with mine!)

      Hugs and love to my sister survivor!

      Diann
      (kalindria)

      over 2 years ago
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    avonlea02 asked a questionOvarian and Fallopian Tube Cancer

    Thinking about applying for permanent Disability

    7 answers
    • alivenwell's Avatar
      alivenwell

      I'd recommend checking participating insurance companies at the oncologist. Mine narrowed choices to approximately 2 or 3 companies/benefits.
      It may be a way for you to take your time and recover with a little more grace. I do regret not taking at least a short term disability, but like you said, the budget is more tight.
      Your health should be a priority. You can work from home at your own pace, too.

      over 2 years ago
    • cam32505's Avatar
      cam32505

      There's no reason why you can't take the disability now. If you recover, you can always go back to work, probably not at the same job. My ex husband has been on and off disability for most of his adult life, due to emotional issues.

      over 2 years ago
    • kkelly111's Avatar
      kkelly111

      Apply for disability right away because it takes time, 5 months if I remember right. It is tight, but your rest and health are the most important thing. I am lucky enough to have parents help with my health insurance or I won't know what to do, $900 a month. You can make things work and sleeping in is wonderful, enjoy a less stressful life.

      over 2 years ago