• bcoll's Avatar

    bcoll started following

    User: CancerNews

  • bcoll's Avatar

    bcoll shared an experience

    Decision Point: I want to apologize for my original cockiness and or arrogance. It’s has nothing to do with the site or the people on it – it’s about me. I’m still angry or frustrated at times.

    2 Comments
    • shauna0915's Avatar
      shauna0915

      I'm sure everyone here understands the anger and frustration. It's a completely natural and acceptable emotional response to something as devastating as cancer. Whether patient, survivor, caregiver or other association, everyone is affected by cancer in some way and it's very easy to let it get to you. Just try to remember we are all here for the same reason... cancer has kicked all of us in the gut in one form or another and we're all trying to figure out how to deal with it. Stay strong.

      over 4 years ago
    • DaveWaz's Avatar
      DaveWaz

      Don't worry, bcoll. We have your back.

      over 4 years ago
  • bcoll's Avatar

    bcoll wrote on Mia's wall

    I had stage 4 squamous cell carcinoma of base of tongue. my tumor was too large to operate so they did radiation and chemo first. The cradiation ruined the tissue in my mouth, not vto mention what the chemo does. I have since had surgery - removed partial tongue rear jaw replaced with forearm muscle and thigh muscle. 3-months since surgery doing well.
    Chemo and radiation for me were very hard. Chemo made me delerious, unable to handle normal bodily functions and more. I was scheduled for three sessions, had to stop a two, white blood count too low. Radiation although pinpointed to a small area of jaw and kneck; it desrtoyed the tissue inside of my mouth - very painful. i can not eat solid food to this day (very little solid food) still using g-tube. hope you have one. it's a life saver. Don't hesitate to ask your doctor for medications for pain, diarhea, constipation, sleep, anything STAY COMFORTABLE you'll return to the old you (somewhat) in a matter of weeks.

    1 Comment
    • JoeTEMT's Avatar
      JoeTEMT

      Hello,
      Had the same cancer as you but in my sinus! Had surgery, plastic surgery price of calf put on y cheek lost most teeth ,feeding tube and a trach put in my neck! Went to Memorial Sloan Kettering in NYC, wow! Are they great! I am now cancer free and had radiation at Sloan Kettering in their Basking Ridge site! As I am also from NJ! Ever need to talk I am available to talk! Been through t all!

      over 3 years ago
  • bcoll's Avatar

    bcoll asked a questionHead & Neck/Throat Cancer

    Like 'krbrowndog' this seems to be a self-promotional , feel-good site for KarenG. there is not much help from others. I'll keep searching.

    10 answers
    • krbrowndog's Avatar
      krbrowndog

      I have tried to delete my original complaint about the site as I have discoverd it to have some value, but I keep getting comments on my orgianl statement, how do I delete it so as to stop peeps from beating me up. thanks Keith

      over 4 years ago
    • krbrowndog's Avatar
      krbrowndog

      It is tied to bcoll statement, but its not a big deal. Just wanted to set the record straight. I was angry and wasn't getting any support and lashed out, not too uncommon I hear. anyway. keep the site going, its a great resource

      over 4 years ago
    • krbrowndog's Avatar
      krbrowndog

      I wish I could delete this as I was wrong wrong wrong, so how can i delete this statement?

      almost 4 years ago
  • bcoll's Avatar

    bcoll shared an experience

    Loss (Job): 40-years as a self-employed performing singer, songwriter, author, and voice-over artist - now jobless and careerless. Quality of life struggle... career path ends at a steep and sudden cliff.
    Speech seriously affected by surgery of tongue and jaw.

    3 Comments
    • shauna0915's Avatar
      shauna0915

      Why can't you continue as a songwriter and author? I understand that your speech is seriously affected, but you still have your mind and hands, right? Don't stop doing what you CAN do because of the parts you are no longer able to do. You can write it...someone else can sing it. I wish you the best in your journey.

      over 4 years ago
    • bcoll's Avatar
      bcoll

      Thank you - I will - I must!

      over 4 years ago
    • shauna0915's Avatar
      shauna0915

      Excellent! You can't let it stop you. You may not be able to do all that you did before, so now you have to learn to adjust and figure out what you still can do...and do it better than ever! You'll figure it out. Good luck!

      over 4 years ago
  • bcoll's Avatar

    bcoll shared an experience

    Procedure or Surgery (Surgery): After completing weeks of radiation and chemo a PET scan was performed. It revealed that the tumor was approx. 35% smaller. It was then that surgery was recommended and performed. It required removing lymph nodes and part of tongue using forearm and thigh as replacements.
    Twelve-hour surgery with 10-days in ICU.