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- Seaside Heights, NJ
- Member Since Sep 2012
Their Diagnoses (1)
- Patient: Breast Cancer
- Patient Info: Receiving hospice or palliative care, Diagnosed: almost 5 years ago, Female, Age: 58, Stage IV, HER2 Positive: No, ER Positive: No, PR Positive: Don't Know
- View this journey (5 Experiences)
bcs4 posted an update
Just to say thank you. There so many other people out there that are "like me". The group I went to recently was very small and had only "first timers" (recently diagnosed stage I or II breast cancer. I'm stage IV) .
I worried I would scare them with my "boogie man" ( new diagnosis) after being ok for 6 years.
* I remember my fears from my first time around. The fear after my treatment that something would happen again. I put that all away along time ago and here I am again a little old, hopefully a little wiser and finding out every day if I'm up to this new challenge.
The group "leader" told me before the group just to be honest. So I explained my diagnosis and told them that I was feeling really great (and I am). I have a great doctor and go to good cancer center. I go about my daily life with a few changes. I could relate to them on some level but I really needed to have some contact with people like me.
bcs4 posted an update
I'm looking for people like me. Stage 4 with mets to the bones. My "repeat offender" as I call my cancer, is in my lumbar spine, thoracic spine, pelvis both hips and femurs. There is a small area in my left lung and left kidney. I feel really good and people seem surprised that I feel as good as I do. I just need to know that there are other people out there like me and how they are coping. I'm generally a joker and laughing but I don't know anyone like me.
bcs4 shared an experience
Decision Point (Changed oncologists!): The oncologist I was sent to was the one I had back in 2006 when I first was diagnosed. It was a nightmare! I was her first pt. in private practice and she did not know what to do for me! I was so sick because she did not give me anything for side effects and when I complained that I felt like I was dieing she told me "what do you expect! You have cancer and get chemo! Of course your sick Just stay in bed until you feel better!!"
The hospital sent me back to her and she gave me three months to live. "Your incurable. I can try some radiation and some drugs but I don't see past 3 months." I felt to good to be dieing!'
I went home, went over all my tests, made some phone calls and checked the internet. I went to a local cancer center (Monmouth Medical Center Breast Cancer Center Long Branch) and I'm still here! 7 months and I feel pretty darn good! The doctors and staff are wonderful to me.