• Beaner54's Avatar

    Beaner54 asked a questionEndometrial (Uterine) Cancer

    ostomy

    • geekling's Avatar
      geekling

      Still struggling. Havent met a doc who could offer me anything tolerable and, to date, none of them are willing to cooperate with something not too drastic.

      I want to try HBOT again. I had three sessions in a building which made me ill (mold allergy). It did not get a fair chance and now I dont know where to get a prescription.

      I refused a colostomy bag because I want fewer issues, not more.

      One doc offered 'ablation' but could not come up with patients who would tell me it had improved their lives.

      I have troubles trusting doctors. In the past 30 years, I have only found 2 with whom I could deal and trust to not try to hurt me further. One is dead and the other moved across the country.
      I am still looking.

      I wish one of us had better answers for the other.

      Check into you level of hydrochloric acid and do what you can to restore proper levels of gut bacteria.

      Stay in touch, just in case you find a way.

      22 days ago
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    Beaner54 wrote on celiasarajian's wall

    How are things Celia?
    I saw my gyn/onc .... no treatment as yet. He will continue to follow me closely. My next app't is in 3 months and a CT scan then, also.
    Next week I am having a needle biopsy of my thyroid. There was a nodule found on the CT scan done 9/12.
    Fingers crossed it is benign.

    Best Wishes and hoping today brings you something to smile about.

    2 Comments
    • celiasarajian's Avatar
      celiasarajian

      Hi Barb: So glad to hear from you. I know your gyn doesn't want to treat you yet but did the scan stay the same? No increase in growth? I am going to send a prayer up as soon as I finish typing about your pesky thyroid. It is ALWAYS something we have to worry about. My heart is with you. I will be smiling today because I am going to take care of my grand angel, Chase, and so smiles are GUARANTEED. Hugs…..

      about 1 month ago
    • Beaner54's Avatar
      Beaner54

      Celia, the nodule in my chest was surgically removed in June along with a portion of my lower left lobe. The CT scan done in Sept showed no new ones. Hooray.
      I did ask him about hormone therapy for the metastasis and he said that might be an option in time.
      Hate the thoughts of this upcoming needle biopsy. Grrrrr.

      Have fun with your grandbaby. They surely are a joy. I have 4 grandkids but they aren't babies anymore. My son has 2 boys, ages 11 and 14. My daughter has 2 girls, ages 12 and 13.
      Looking forward to sunshine today. The skies have been dreary for the past
      few days.
      Take Care.

      about 1 month ago
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    Beaner54 wrote on geekling's wall

    Thanks for your response geekling. Awkward but I have to ask if your leakage is always stool? I have alot of clear mucous. So much so that I am wet most of the time.

    2 Comments
    • geekling's Avatar
      geekling

      Gads but I hate to discuss this stuff in public.
      Suffice to say that one is not ever really alone?
      If not, please go to the link and write to me directly and privately and we can discuss details.

      Www.etsy.com/shop/rawmaven

      I guess I have managed to grow some offense muscles. They gave me 80 radiation sessions. The first radiologist lied to me about possible side effects. I put myself into some sort of trance. I took zero meds until halfway thru.
      I thought seriously about stopping once it became obvious I had been given fairy tales in place of answers to questions. I took a week off to contemplate my fate.

      I can help you a little, maybe, by explaining what helped me and what did not. It took FOUR years before I could use toilet paper again. Difficult place to revisit.

      You ought to wear a pad if the leakage makes you uncomfortable (gads, that reads like a doctor speaks .. I just figured if it leaked out the front end, it was p and from the back end, it had to be pooh.

      Do you know Kegel exercises? Look them up, ask for a radiation therapist who will help and show you how along with other things. Those bottom end muscles have been tortured. Any cillia you might have had below is likely vaporized away.

      If the doctors hadnt done what they did on purpose, I would have been suffering in a burn unit.

      Seriously, recheck your diet too. Enzymes helped as did mapping out good bathrooms (Neiman Marcus yes, Big Lots no). There were a couple of times when I had to zip back to my car and be sitting on towels for the drive home. The first time I cried like a baby.

      Enzymes are good. Ever heard of adrenal fatigue? Replace dairy, if you can. It makes mucus.

      Dont worry. Be proactive as possible. Thanx for sending the note.

      Best wishes

      2 months ago
    • geekling's Avatar
      geekling

      And please pardon the delay. I dont get any notifications from Whatnext so I find notes sonewhat haphazardly. I just found your note tonight.

      2 months ago
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