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    Beaner54 wrote on geekling's wall

    Thanks for your response geekling. Awkward but I have to ask if your leakage is always stool? I have alot of clear mucous. So much so that I am wet most of the time.

    2 Comments
    • geekling's Avatar
      geekling

      Gads but I hate to discuss this stuff in public.
      Suffice to say that one is not ever really alone?
      If not, please go to the link and write to me directly and privately and we can discuss details.

      Www.etsy.com/shop/rawmaven

      I guess I have managed to grow some offense muscles. They gave me 80 radiation sessions. The first radiologist lied to me about possible side effects. I put myself into some sort of trance. I took zero meds until halfway thru.
      I thought seriously about stopping once it became obvious I had been given fairy tales in place of answers to questions. I took a week off to contemplate my fate.

      I can help you a little, maybe, by explaining what helped me and what did not. It took FOUR years before I could use toilet paper again. Difficult place to revisit.

      You ought to wear a pad if the leakage makes you uncomfortable (gads, that reads like a doctor speaks .. I just figured if it leaked out the front end, it was p and from the back end, it had to be pooh.

      Do you know Kegel exercises? Look them up, ask for a radiation therapist who will help and show you how along with other things. Those bottom end muscles have been tortured. Any cillia you might have had below is likely vaporized away.

      If the doctors hadnt done what they did on purpose, I would have been suffering in a burn unit.

      Seriously, recheck your diet too. Enzymes helped as did mapping out good bathrooms (Neiman Marcus yes, Big Lots no). There were a couple of times when I had to zip back to my car and be sitting on towels for the drive home. The first time I cried like a baby.

      Enzymes are good. Ever heard of adrenal fatigue? Replace dairy, if you can. It makes mucus.

      Dont worry. Be proactive as possible. Thanx for sending the note.

      Best wishes

      about 2 hours ago
    • geekling's Avatar
      geekling

      And please pardon the delay. I dont get any notifications from Whatnext so I find notes sonewhat haphazardly. I just found your note tonight.

      about 2 hours ago
  • Beaner54's Avatar

    Beaner54 asked a questionEndometrial (Uterine) Cancer

    treatment for leaky bowel

    • barryboomer's Avatar
      barryboomer

      Try using something like psyllium powder to help keep your stool firm so it won't leak as much....

      16 days ago
    • geekling's Avatar
      geekling

      Boomer, psyllium will make it worse.

      I do a lot of Kegel exercises. Im waiting to hear any doctor suggest anything better.

      You ought to be eating a little fermented food on a regular basis. Enzymes also seem to make a difference for me.

      I use a product called "Cell Guard" on a regular basis. It seems that a lot of folks treated on their bottom end have less control over toilet habits, digest less of what they eat and, in my case, bleed 24/7 from a radiation scar caused by treatment.

      Eat foods which are bulky and hope for the best. Treatment can easily blow out the adrenals making digestion more difficult. One needs to not only eat better food choices but to take extra steppes to make sure the food you eat doesnt just drop in and then get flushed out without being fully digested.

      It is, pardon the pun, a XXX shoot

      15 days ago
    • geekling's Avatar
      geekling

      Er, a crapola shoot

      15 days ago
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    Beaner54 wrote on celiasarajian's wall

    How are you Celia? I had my CT scan Monday and will see the oncolobist next Wed.

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    • celiasarajian's Avatar
      celiasarajian

      Hi Barb: I am doing ok. My grand angel turns 2 on Saturday so I am happy and busy planning his party with my daughter. I all of these moments are so bittersweet. I had a complete melt down while I was filling up his party bags because I could not get past the fact that I may not be doing this again. I had my cry and started my mantra that there are no guarantees for ANYBODY, but I still find it very hard.

      Since you had your CT scan on Monday do you have to wait until Wed to get the results? Mine come over the internet which I am not sure is good or bad. I am a nurse so I have a little knowledge, which again I am not sure is good or bad. I just said a special prayer that your scan results are good. I am sure you are nervous waiting. I HATE waiting for ANYTHING…..I lesson I am still learning at 64!! Please know I appreciate your support and please keep me posted as soon as you have some news. Hugs….Celia

      16 days ago
    • Beaner54's Avatar
      Beaner54

      Happy Birthday to your grand angel. Oh how I love those sweet celebrations. We still have them yet the grandkids are now 10,11,12,13 years of age. Time passes so quickly.

      Wishing you all the best.
      I will chat again soon.

      16 days ago
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    Beaner54 wrote on celiasarajian's wall

    Hoping you are enjoying the Labor day weekend Celia.

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    • celiasarajian's Avatar
      celiasarajian

      Hi Barb: Thanks so much for checking on me. I had my appointment on Tuesday and was told that they don't have very good results with chemo for metastatic lung cancer. Is that why you chose to not have it? And are you just doing a "wait and see"? Have you asked about any statistics on that? I know I don't want to know but then again, I do. The doctor started me on a combo of Megace for 3 weeks then Tamoxifin for 3 weeks. I know they are estrogen and progesterone. I found in notes to myself last year to ask about this combination and never did and now wonder why the doctors didn't suggest it a year ago. I haven't read very good results with this but I am trying it. I am trying to stay positive, especially for my daughter and grand son. I am at the shore with them for the Labor Day week-end and it is hard to pretend that nothing is wrong but i just can't bring myself to tell her everything. I kind of just want to wait and see how things go. My friends disagree with this but it is how I feel. I wonder how you are doing and do you worry about "what might happen"? Again, I cannot thank you enough for your concern. Hugs and Happy Labor Day to you and your family also!!!

      25 days ago
    • Beaner54's Avatar
      Beaner54

      Yes, Celia - my oncologist also told me that he didn't think chemo treatments would be of any benefit. That is why I am doing a "wait and see". I will have another CT scan on 9/12 and will see the doctor on 9/21. I remember my doctor saying that hormone therapy was one of the options but not for me. I forget why but surely plan to ask when I see him in a few weeks.

      I sometimes worry about what will happen but then realize that nobody actually knows how long they will live - right? I have shared everything with my 2 kids. My daughter is 44 and my son is 40yo. They want me to fight and that is what I am doing ....

      Chat again.
      It was good to hear from you Celia.

      25 days ago