• BeckyTice's Avatar

    BeckyTice asked a questionColorectal (Colon) Cancer

    Shouldn't the Doctors know my history?

    20 answers
    • Ejourneys' Avatar
      Ejourneys

      From here on in, ask for a CD of every scan you get. This usually means asking at the front desk and filling out a form. The CDs come with reading software built in. Keep your own set of records, as complete as you can get them, and have a copy with you whenever you see a new doctor.

      Info falls through the cracks. I'm also a caregiver, and I have provided doctor's office notes and test results that should have been conveyed by one MD to another but that weren't. Fortunately, my own medical team is well-coordinated. Even though my partner has listed our PCP on her HIPPA forms, some test results are still not getting through. Fortunately, I ask for them so I can provide copies. That's not the way it should happen, but it is what it is.

      2 days ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      @BeckyTice, are you going to Houston to MD Anderson or do they have satellite hospital in AZ? My hospital, UTSW, is in the same group, but I have never been treated except with the greatest respect. My oncologist goes over my scans with me every time. We often do not agree with the radiologist report.

      I do sometimes request my scans in DVD. I haven't actually tried to look at them.

      If you're coming to Texas anyway, maybe you would want to consider changing hospitals. I know MD Anderson is one of the very top ranked hospitals, but after reading how you're being treated, I have to wonder why.

      1 day ago
    • BeckyTice's Avatar
      BeckyTice

      They have a practice here in AZ.

      1 day ago
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    BeckyTice asked a questionColorectal (Colon) Cancer

    Second Opinion?

    9 answers
    • BoiseB's Avatar
      BoiseB

      Becky you are so brave and your sense of humor shows through what must be a terrifying experience for you.
      I am placing you on my prayer list.

      5 months ago
    • BeckyTice's Avatar
      BeckyTice

      I'm not brave and a sense of humor, I have learned, is a good way of dealing with situation that are basically out of my control. I do appreciate being on prayer lists. Prayer has gotten me this far!

      I saw my primary care doctor yesterday.

      She agreed that I am safe not going back to the Urologist. Since the stint is no longer there, it's idiotic to pay $50 copay and wait for an hour for him to arrive [he's very busy] and tell me, "the stint is no longer there". She'll follow my case with me.

      She also agreed that I may not have to go to the Gastroenterologist. She also agreed that I should not go back to that practice. She agreed that her staff should find me another practice that accepts my insurance. She's ordered some blood tests to see how my liver panel numbers are progressing. I'd rather spend a $10 copay for the blood tests than $50 copay to be confronted by a doctor who will look down on me for questioning their decision. I mean how dare I go to the Oncologist instead of rushing into surgery.

      I'm going for the blood test on Monday. We'll see how this goes.

      I'm glad I have the What Next site to go back to. Some people are out there who don't have any support or insurance.

      5 months ago
    • BoiseB's Avatar
      BoiseB

      Your PCP is an angel, I'll put her on my prayer list also I am so glad things are working out for you.

      5 months ago