An answer posted on our Twitter Page for this question reads: Get to a Sarcoma Center ASAP for evaluation & treatment set-up ... Even if it involves travel.
My Goodwill
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Bees started following
Question: Is anyone like me out there?
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Bees started following
Question: Metastasized Leiomyosarcoma to the lungs
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Bees posted an update
Last week I had a biopsy on 1 of my 3 tumors in my lungs. My lung started hemoraging and I started coughing up alot of blood. They had to stop since they could no longer see the tumor. They got a couple of small samples. Unfortunately, pathology could not do a report on them. Next week, I go in AGAIN for another attempt on the big one next to my heart. Wish me luck. My spirits are high! I just surround myself with everyone I love:)
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Bees shared an experience
Oh No (Cancer has spread/Metastasized): I was diagnosed with stage 3 abdominal Leiomyosarcoma on my ureter in 2010. Had the tumor resected, then 6 weeks of radiation (big mistake). Then had a complete bowel reconstruction, removal of colon, ureter and complete hysterectomy 8 weeks later. October 2011, had a completely blocked bowel due to radiation scar tissue. Was in hospital another week. January 2013, another bowel reconstruction. Started hyperbaric oxygen treatment June 2013,to try to save my bladder. I need a new bladder due to radiation damage, so I hope this treatment works. I need 60 treatments, I'm on 14. Went in this last week for my 3 month CT Scan and now have a 1" sarcoma on my lung. Dr's will meet to see if it is even operable. It's right in the middle of my right lung against my heart.
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Bees shared an experience
Radiation (Internal radiation): I have had 3 major surgeries. My last one in January 2013 was a bowel resection due to radiation damage. I have 2 pending surgeries due to radiation damage. Currently I am undergoing hyperbaric oxygen treatments to try to save my bladder. Crossing my fingers this works. If not, I will need a new bladder ( due to severe radiation damage. If I could go back, I would NEVER have had radiation.
