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    Bees asked a questionLung Cancer

    Metastasized Leiomyosarcoma to the lungs

    • GregP_WN's Avatar
      GregP_WN

      An answer posted on our Twitter Page for this question reads: Get to a Sarcoma Center ASAP for evaluation & treatment set-up ... Even if it involves travel.

      over 5 years ago
    • cam32505's Avatar
      cam32505

      Please consider the sarcoma doctor, but also the risks involved. There have been many people who were treated for cancer, and the treatment took them sooner than the cancer would have. So, please ask the questions.

      over 5 years ago
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    Last week I had a biopsy on 1 of my 3 tumors in my lungs. My lung started hemoraging and I started coughing up alot of blood. They had to stop since they could no longer see the tumor. They got a couple of small samples. Unfortunately, pathology could not do a report on them. Next week, I go in AGAIN for another attempt on the big one next to my heart. Wish me luck. My spirits are high! I just surround myself with everyone I love:)

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    Oh No (Cancer has spread/Metastasized): I was diagnosed with stage 3 abdominal Leiomyosarcoma on my ureter in 2010. Had the tumor resected, then 6 weeks of radiation (big mistake). Then had a complete bowel reconstruction, removal of colon, ureter and complete hysterectomy 8 weeks later. October 2011, had a completely blocked bowel due to radiation scar tissue. Was in hospital another week. January 2013, another bowel reconstruction. Started hyperbaric oxygen treatment June 2013,to try to save my bladder. I need a new bladder due to radiation damage, so I hope this treatment works. I need 60 treatments, I'm on 14. Went in this last week for my 3 month CT Scan and now have a 1" sarcoma on my lung. Dr's will meet to see if it is even operable. It's right in the middle of my right lung against my heart.

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    Bees shared an experience

    Radiation (Internal radiation): I have had 3 major surgeries. My last one in January 2013 was a bowel resection due to radiation damage. I have 2 pending surgeries due to radiation damage. Currently I am undergoing hyperbaric oxygen treatments to try to save my bladder. Crossing my fingers this works. If not, I will need a new bladder ( due to severe radiation damage. If I could go back, I would NEVER have had radiation.