• Beierly's Avatar

    Beierly asked a questionMultiple Myeloma

    Stem Cell Transplant

    5 answers
    • Debio's Avatar

      I had an autologous stem cell transplant.(my own stem cells). The proceedure was not painful but because (I believe it was) my potassium kept dropping, I kept developing an internal buzzing. It is hard to explain, but I literally had this buzz inside my head that would not go away so they had to hang a potassium drip to stop the problem.

      The chemo they have to give you to prepare your body for the transplant is very stong. I had a hard time keeping any food down and I really didn't have any appetite at all for a week. The actual transplant was a breeze. No issues and it was over so quickly.

      What the transplant did for me was amazing. Upon blood testing a month or 2 later I had less than 1% myeloma proteins in my blood stream. It is now about 2 years out from my transplant and I still have less than 1%, so I am very happy I had the proceedure.

      Good luck to your Mom!

      over 3 years ago
    • Charlieb's Avatar

      I had an autologous stem cell transplant last June after finishing 4 rounds of chemo. There are a lot of factors involved besides age. I am 57, you don't say how old your mom is, and was in good shape going into chemo. My multiple myeloma had not advanced to do any damage so I just had to recover from going neutropenic. It what was worst than any flu I'd ever had and took a very positive attitude to keep going some days. I also had a great support staff surrounding me, which really helped. After the first month just trying to stay out of bed for the day was an effort. Unfortunately I never obtained remission and am back on maintenance. I have no regrets on what I went through. Don't just focus on your mom's age. How healthy is she now? Can she mentally deal with the ups and downs of treatment? Are there friends and family that are in it for the long haul with her?

      over 3 years ago
    • Therose's Avatar

      Hi Beierly,
      I had a stem cell transplant I do not know exact age of your Mother but I can tell you this. I do not regret it I have been cancerfree since. There are certain precautions that have to be taken in term of making sure you keep away from young children initially due possibility of catching germs from them. Staying away from crowds until immune system is built back up. Being careful to take care of yourself to be in best of health according to circumstances so other organ are in good working order. I am sure it varies from person to person. With proper care you will be fine. At first you need someone close but as time past you get stronger and stronger.

      over 3 years ago
  • Beierly's Avatar

    Beierly wrote on RonnieMaynard's wall

    So was the transplant painful? My mom had MGUS for 13 years and it is now MM as of November. She is on the site named Fazzie, and I know she would love to hear an encouraging story. I am so glad that you are doing well. And thank you for sharing yourself and knowledge. It is so appreciated.

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    Beierly wrote on Antolin's wall

    So are you in remission? My mom is in active treatment for MM and was told she would not even be a candidate until she was in remission.

    I know it hard, but keep thinking positive and the gain to come from the procedure. You will be in my thoughts and prayers!

    1 Comment
    • Antolin's Avatar

      Hi Beierly, I think remission is considered a value below 5% of the plasma cells in the bone marrow, I am at 7% but they pulled the plug on the len/dex treatment because the revlimid was starting to affect my liver, as a side note revlimid apparently plateaued during the later part of the 4 month course and was not bringing down the plasma cells significantly after my 3rd or 4th x 21 day therapies. So they added cyclophosphamide in my fifth therapy and that brought me down to 7 %. I hope your mom does well with the treatment and that she responds well to the meds. Stay positive to cope with the new challenges and I am sure your Mom will feed from that sense of positivism. Thanks for being thoughtfull and the prayers. I will do the same for your Mom. :)

      almost 4 years ago
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    Beierly wrote on fazzie's wall

    Hope treatment went okay for you today!!