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    Bellamore started following

    User: CancerNews

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    Bellamore shared an experience

    Procedure or Surgery

  • Bellamore's Avatar

    Bellamore shared an experience

    Procedure or Surgery (short term bile drainage stent): I feel this is just the beginning of a long process. It's not an uncommon surgery with this type of cancer, but it's not a sure thing either. Usually takes multiply attempts to get the stent placed totally internally

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    Bellamore asked a questionBile Duct (Cholangiocarcinoma) Cancer

    distented stomach

    • Peroll's Avatar
      Peroll

      I assume that you have told your Drs that the meds are not working and that you are in pain from the bloat. If not you need to do so ASAP. You need to keep telling them that you need help with the bloat and pain and keep telling them until they take you seriously or refer you to someone that does. You have a right as a patient to an explanation of what is going on that you can understand and you need to insist that your Drs provide it. Try making the last appointment of the day so that the Dr can't tell you that others are waiting as an excuse to cut your appointment short without answering all of your questions. Good Luck and ley us know how else we can help.

      over 3 years ago
    • carm's Avatar
      carm

      Bellamore,
      Hello, I am an oncology nurse and it sounds to me like ascites. You might be retaining fluid and if so, it could interfere in your food intake and also in your breathing, making you short of breath. If this is the case, you might need a paracentesis. I agree with Peroll in that you need to make your doctors aware of this situation and/or seek comfort at an ER. Best of luck to you, Carm RN.

      over 3 years ago
    • FreeBird's Avatar
      FreeBird

      I agree with both Peroll and carm. http://www.nlm.nih.gov/medlineplus/ency/article/000286.htm

      http://www.cancer.net/all-about-cancer/treating-cancer/managing-side-effects/fluid-abdomen-or-ascites

      My dad had cancer spread to his liver too. His bloating in his abdomen was not that bad, but we were told that it could become very big. Mostly he had problems with his legs, ankles and feet swelling. Do you have that also? They gave him a couple different diuretics to try. They didn't work too well. Then hospice tried one called Bumex, and within two days, the swelling in his legs, ankles and feet disappeared completely.

      What I would do if your doctor doesn't address this issue is seek the advice of a different doctor for that problem, and do it a.s.a.p. to have relief.

      over 3 years ago
  • Bellamore's Avatar

    Bellamore asked a questionBile Duct (Cholangiocarcinoma) Cancer

    Chemo for the rest of your life?????

    9 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I am very sorry for your loss. You are dealing with so much all at once. The loss of your daughter, the cancer, the loss of mobility due to the fractures. I know there are some organizations that allow you to speak w/a counselor over the phone, if you are not able to get to a therapist. I wish you the best. And I agree w/the idea of a 2nd opinion.

      over 3 years ago
    • Rosa's Avatar
      Rosa

      Do get a second or third opinion, keep looking for options.
      But, IF you do have to be on chemo the rest of your life, think that there are many conditions for which you have to be on treatment for life: high blood pressure, diabetes, lupus, etc., etc.
      You do what you have to do to keep on living. Every day there are many discoveries to help us.
      Sorry for the loss of your daughter. We'll keep you both on our prayers.
      Be positive, be strong, be hopeful
      Blessings

      over 3 years ago
    • IndigoBlue's Avatar
      IndigoBlue

      I just started chemo last week for colon cancer. I have to take it for the rest of my life. I have chemo at the hospital for 3 hours and then go home for two days with the baby bottle, and then back to the hospital to have everything disconnected. I stay home for 14 days and start all over again. I can have a break from chemo if it gets too much for me, or the cancer has not come back, or I want to go on a trip, or I have something else I have to do. I have to let the hospital know about a month ahead of time and how long I need a break for. Just trying to get used to everything.

      about 1 month ago
  • Bellamore's Avatar

    Bellamore asked a questionBile Duct (Cholangiocarcinoma) Cancer

    Have any of your odctors prescribed celebrex for pain?

    • carm's Avatar
      carm

      Bellamore,
      Wow, what a great question! In the years that Celebrex first came out, the drug company (then Searle) did a three year study on Celebrex and its potential to prevent colon cancer. The trial was called the APT prevention trial and I was a research coordinator at the time so I participated in the study and had 40 patients enrolled in the trial. It actually worked quite well. Although it was not trialed for pain in cancer, I have seen it used for pain in oncology. It is a cox-2 inhibitor and so it stifles the enzyme that produces an inflammatory pain. If you are on it I wish you the best of luck with it. I know it did wonderful in the Searle Trials, Carm RN.

      almost 4 years ago