• BoiseB's Avatar

    BoiseB wrote on betheboo's wall

    I am sorry that I have been late in welcoming you to WhatNext. I have had a rough couple of months but I am a tough cookie
    Cancer survivors should not have to face cancer alone; we are here to help. Thank you for filling out your profile so completely
    I am a nine year survivor of stage IV esophageal cancer. I am currently dealing with two cancers. I won't say survival is easy but it is doable and well worth the effort

  • GregP_WN's Avatar

    GregP_WN wrote on betheboo's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page, Take a look at it to get you started on some information. You will notice at the left side of that page a listing of most types of cancer. You can scroll down to find your diagnosis. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/

    If you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

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    GregP 3X Survivor
    WhatNext Community Mgr

  • chiefomni's Avatar

    chiefomni wrote on betheboo's wall

    I am an esophageal cancer stage III survivor of 19 years. We created the Esophageal Cancer Education Foundation www.fightec.org in part to help patients with their journey through this disease.
    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get at any book store.
    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org
    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue.. Go to www.fightec.org and click on services to get more information.
    We also have a 24 hour hotline to help with quality of life questions as well. We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.
    Good luck
    Bart

  • betheboo's Avatar

    betheboo asked a questionEsophagus (Esophageal) Cancer

    Esophageal Cancer post treatment scans

    4 answers
    • Pro's Avatar
      Pro

      My Dr had me getting scans every 6 months to 5 years. 1 every year to 10.

      5 months ago
    • 2943's Avatar
      2943

      My Thoracic says every 3 mos for a year, then every 6 for 4 more then we will see.

      4 months ago
    • BoiseB's Avatar
      BoiseB

      Since my cancer is stage IV my scans are every year for life. That was until this April, when something strange showed up on my scans. However this looked like it might be my other cancer. So we are watching it with blood tests in three months in 3 months and scans in six months. Having two different cancers sort of complicates things

      4 months ago
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    betheboo started following

  • betheboo's Avatar

    betheboo shared an experience

    Oh No (Large Hiatial Hernia was diagnosed due to surgery): I had to have another surgery to fix a hiatial hernia due to the weakening area after my esophageal rebuild.