• betty's Avatar

    betty started following

    Question: Arimidex

  • betty's Avatar

    betty asked a questionOvarian and Fallopian Tube Cancer

    Arimidex

    • Tinaweebe's Avatar
      Tinaweebe

      Hi Betty. I took it for about 6 months. During that time, I didn't grow any body hair back and my joints killed me. Especially my knees. It's been 6 months now that I've been off of it and my knees still hurt.
      I know this doesn't happen to everyone and I hope it doesn't to you.

      8 months ago
    • cllinda's Avatar
      cllinda

      I have been on it for over five years. No real problems. A few hot flashes but no big deal.
      My doctor wants me on it for ten years. It is thought to keep breast cancer away.

      8 months ago
  • betty's Avatar

    betty asked a questionOvarian and Fallopian Tube Cancer

    CA 125

    12 answers
    • kalindria's Avatar
      kalindria

      I'm with Sblacksbear! I'd want a second opinion. Of course my CA 125 is very reactive and very indicative of the state of my disease which isn't true for everyone.

      How often is your CA 125 being tested and has the rise been fast or slow? If you're not being tested monthly, perhaps more frequent tests are in order. This may be a fluke brought on by infection rather than a disease recurrence.

      I had a recurrence of my stage IV ovarian cancer in the summer of 2016 and one indicator was my slowly rising CA 125. It got to 84 before the cancerous nodules (of 1 and 2 CM) were visible on CT scans.

      Don't worry too much about the difference between stage 3 and 4; you and I are both considered "late stage" and neither is great. But with the help of our medical teams, we can still live a great life and enjoy ourselves.

      Ask about a second opinion or perhaps getting your CT scan sooner. For your peace of mind if nothing else.

      10 months ago
    • lhobbsn99's Avatar
      lhobbsn99

      Dear Bettty,

      My experience is that when my CA 125 came in at 40, the Dr ordered CT Scan, saw some activity, then ordered PET confirming recurrence. Started chemo within 3 days... the new cocktail is Carbo-Platin and Doxil (the red drug) every 28 days. Next treatment is scheduled for next week.

      I'm in the corner with the other ladies, a second opinion is always a good idea. If that isn't a good option because of where you are located, then I'l request a new CA125 as soon as possible. Assuming you've already met your deductible for the year... what is the downside to new scan?

      Best wishes, your concerns are valid. Sometimes you have to be your own advocate. Wishing us all the best...

      Linda

      10 months ago
    • kalindria's Avatar
      kalindria

      Hi Betty - checking in to see if you've had any news or made progress? We care.

      10 months ago
  • betty's Avatar

    betty started following

    Question: CA 125

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    betty started following

  • betty's Avatar

    betty asked a questionOvarian and Fallopian Tube Cancer

    Has anyone taken Nolvadex

    • cards7up's Avatar
      cards7up

      My friend had early stage BC and did radiation then went on to Tamoxifen. She had no problems at all. You should discuss your concerns with your oncologist.

      over 1 year ago
    • geekling's Avatar
      geekling

      Get an independent second opinion before making any decisions.

      Best wishes.

      over 1 year ago
    • Kirvin's Avatar
      Kirvin

      Sometimes the Internet isn't our friend. We freak ourselves out by doing our own research on this stuff. The treatment for cancer has serious side effects, but I find it better than the alternative. Most doctors have your best interests at heart. Talk to your oncologist about your concerns and weigh your options. Make an informed decision. Best of luck!

      over 1 year ago