• Beverly's Avatar

    Beverly asked a questionNon-Hodgkin Lymphoma (NHL)

    Dealing with fear

    14 answers
    • cam32505's Avatar
      cam32505

      My onc did not tell me my cancer would come back, but as I progressed, I could tell that they were surprised when they didn't see cancer. I was like why are they putting me through this if they just expect it to come back. The truth is they don't know why the treatment works for some people and not for others. I have a friend who had breast and ovarian cancer 14 years ago. She's still in remission. It's these stories that give the rest of us hope that we will stay well.

      almost 3 years ago
    • cmontano's Avatar
      cmontano

      Forgive me for stating the obvious, but life itself is incurable. We're all going to go sometime, and none of us know exactly when or how. And as hard as it is, cancer is not as bad as some other stuff. In my book a degenerative neuralogical (sp?) disease would be a lot worse. So yeah, all in all, that was a really unhelpful/dumb comment from your doctor. Like so many have said above, what matters is what we're doing now. Fear is natural and understandable but we have to put it in its place - just like we did with the cancer. All best wishes...

      almost 3 years ago
    • RalphH's Avatar
      RalphH

      My onc told me I will have lymphona the rest of my life. So far, I have had three treatments in five years. After my first treatment, the worst one, I still worked but took a lot of recovery time but was able to get the work done I needed to. These last treatments, I missed very little work. This is important to me and I think it helps me respond positively. Fortunately, I am 77 yrs old so I have no idea how much life I have left and plan on doing what I think GOD is asking me to do. As a follower of Christ, I use him as my model. No matter what I experience or suffer, I must remain faithful. With that, I don't have to fear anything.

      almost 3 years ago
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    Beverly started following

    Question: Dealing with fear

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    Beverly shared an experience

    Celebration (Finished treatment): After 2 1/2 years of chemo, I took my last Rituxin treatment yesterday. PET scan came back clean! Mixed emotions about ending chemo - joy because I'm still in remission and fear because my buddy Mr Chemo isn't going to be around any more to keep the cancer away. I've joined a Gilda's Club near me and I'm hoping that the support group will help me with the fear. I'm ok most of the time but then out of the blue I starting thinking what if it comes back. I know that if it does I will just have to deal with it with God's help so all in all it's a very good day.

    1 Comment
    • cmontano's Avatar
      cmontano

      Beverly, what a warrior you are - 2 1/2 years of chemo! I am only scheduled for 6 treatments and after no. 4, feel pretty wiped out. I am very fortunate to be able to say that I just got a clean PET scan as well so I truly celebrate yours with you. I think you are being very proactive in joining the Gilda's Club and that that will be really helpful. I don't have any great wisdom to add but just wanted to acknowledge your struggle and your success. What an incredible accomplishment - kudos!

      almost 3 years ago
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    Beverly wrote on Heidi's wall

    Heidi,
    I am saddened by your words. I will keep you and your family in my prayers.

  • Beverly's Avatar

    Beverly wrote on KathyB's wall

    Kathy hi there. Just think of the chemo as a means to an end and remember there's no such think as a stupid question. I know cos I ask them all of the time. :)

  • Beverly's Avatar

    Beverly wrote on DoubleJ's wall

    I'm glad that you are doing well. Sounds like we are on a similar journey. I have another chemo on 2/10 and then probably another PET around the 29th. That's been the usual timeframe. I know exactly what you mean about the fatigue. Went to the Y today and walked 1/2 mile then got in the warm pool and splashed around with my hubby. My legs felt like jello when I got home but I feel better when I exercise (even if I have to force myself to do it). My doc says all the sideeffects are cumulative - so maybe I'll be done soon. Keep me posted on your progress.