Congratulations! Nothing beats NED!!
- bill1967
- Eden Prairie, MN
- Member Since Sep 2012
Their Diagnoses (1)
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- Patient: Skin Cancer - Melanoma
- Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 11 years ago, Male, Age: 55, Stage IV, BRAF mutation positive: Yes, c-kit positive: Yes
- View this journey (15 Experiences)
Their Links
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bill1967 shared an experience
Celebration (Remission): January 2015: Six-month confirmation scans are still clear. I'm still NED. Officially classified as a Complete Responder to the TIL trial I was in at NIH.
about 7 years ago2 Comments -
bill1967 shared an experience
Celebration (Remission): July 2014: First completely clear scan. I am NED (no evidence of disease)!
about 7 years ago -
bill1967 shared an experience
Celebration (Hair is back): December 2012: At three months post-TIL, my hair on the side of the head is back. The hair on top of my head is thin, but returning, too.
One interesting observation by my doctors:
My formerly blond hair is coming back without pigment. They believe this is an indication that the TIL is attacking the melanocytes in my hair follicles, which color the hair. I'm now a platinum blond.
over 9 years ago -
bill1967 shared an experience
Celebration (Cancer is shrinking): November 2012: Two months post-TIL treatment, the tumors have now shrunk by 65%.
over 9 years ago