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    BILLSBULBS wrote on GregP_WN's wall

    Just saw the pic of you by the skins, awesome! My brother was a life long drummer; played in bands his entire life. Unfortunately; heart disease got him 2 years ago. (Pancan got my wife 5 years ago). Rock on Greg!

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    • GregP_WN's Avatar
      GregP_WN

      Sorry for your loss, cancer continues to suck! We have lost a few in our family in the last few years too. Thanks for the kind words, I've been a drummer since I was 13 and have been in bands throughout the years. I'm currently in another classic rock band. It's a fun hobby.

      almost 2 years ago
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    BILLSBULBS wrote on baxter123's wall

    One day at a time, enjoy every single day. There is no need to worry about tomorrow; because there is only the Eternal "NOW"

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    BILLSBULBS wrote on Gumpus61's wall

    Just wanted to say, THANK YOU for sharing the TRUTH. My wife died 3 years ago from Stage 4 Pancreatic; ( lasted 6 months after diagnosis); and all I can say is, this is EXACTLY what a husband goes through, as a caregiver, partner, soul mate. It brought back a lot of emotions, but family and friends need to know this. I wish no person, to suffer from this disease; nor their caretakers; but people need to know. No one can ever know exactly what it is like, unless they are experiencing it, or involved in being a caretaker. I can go on and on, but your blog really touched me. Thank you, -------

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    • GregP_WN's Avatar
      GregP_WN

      Gumpus61 has written 3 or 4 articles for us here about his journey alongside of his wife as they have been navigating all that comes with a diagnosis. You can find them on our blog page here www.whatnext.com/blog you will have to scroll down through several posts to find them, but they are worth reading.

      almost 2 years ago
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    BILLSBULBS asked a questionPancreatic Cancer

    Bloating ( Fluid in Abdomen)

    11 answers
    • Beeps' Avatar
      Beeps

      Hi Billsbulbs- so very sorry for all the difficulties you and your wife are dealing with. I can't say I know a lot about ascites... Just a tad. I've got the rare PNET. I met a lady at a support group whose husband had the same..... Both of us inoperable. After about 5yrs. He developed ascites. His appetite was tiny- she would make him smoothies & soup.... But he took in very little. The ascites got worse very quickly. She didn't want me to visit because she thought it would freak me out...as it being very possible I will end up with this also. He was very uncomfortable, they loaded him with pain meds around the clock, he went into a semi coma, and he passed quietly within a very short period of a few days. As others have said, please forgive the bluntness- I'm in several on line groups for folks with carcinoid, PNET, etc... Ascites seems to be a very common denominator with this cancer. Everybody has their individual story, no two are exactly the same, I imagine that can also be said for your circumstance. All that being said, I believe that only God knows when our time will be finished here. For me, it's helped to say, think, & believe: His Will Be Done! Prayers going up for you both as you traverse this very rough terrain.

      over 6 years ago
    • BILLSBULBS's Avatar
      BILLSBULBS

      Beeps, thank you so much for sharing this, your thoughts; and prayers. All I can say, is that the Paracentesis's she has had, ( draining the fluid); makes her so much more comfortable, and improves her appetite, fatigue, and breathing. I will be learning to do this for her at home, with the Pluerx catheter system. I am a bit nervous, but I am sure I can do it. Of course, one wonders; "What Next" ( no pun intended). One day at a time. I too am a believer in God's will, and her time will be, when it will be.

      over 6 years ago
    • Beeps' Avatar
      Beeps

      Amen Billsbulbs! Indeed: One day at a time! I also understand that 'performing' some of these medical procedures can be very un-nerving the first few times! Hey- before you know it... You'll be an expert! Hold on... Try to allow some moments that you rest in the Joy of the LORd! It really helps! Sometimes... I just stop for a few seconds and recognize Him... Saying thank you for being with me.. He tells us 'in all things- Thanksgiving' ...not always easy! But if we can get to that place on our walk... We see how His provision is lovingly and abundantly working for us!

      over 6 years ago
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    BILLSBULBS started following

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    BILLSBULBS wrote on robo328's wall

    How is your spouse partner doing? My spouse has stage 4, which has metastasized to her liver. What type of treatment is your spouse partner getting?

    6 Comments
    • BILLSBULBS's Avatar
      BILLSBULBS

      Thanks. Was there hair loss? My wife is really bothered by that. The other 2 chemo's did not cause it, and when they told her they wanted to try Abraxane, with all the side effects; she declined. We are in kind of a treatment "limbo" right now, and not sure how, ( or if she wants to) proceed. Thank you for your feedback.

      over 6 years ago
    • robo328's Avatar
      robo328

      She has only peach fuzz on her head, since going to Abraxane, about 4 mos ago. That doesn't seem to bother her, but it's a roller coaster, over how she feels each day, and some days wants to give up.

      over 6 years ago
    • BILLSBULBS's Avatar
      BILLSBULBS

      That's basically how my wife feels, that's why she is not doing any chemo right now. She got tired of feeling like crap, no energy; no appetite; etc. Keeping an open mind and ear for other options. Right now, just managing the symptoms. I heard an article on the news about ALK inhibitors, some sort of drug that has worked well in some types of cancer. They have to find out the genetic makeup of ones cancer cells first, to determine if this drug may be of help; but it has worked on some stage 4 lung breast cancer patients; and they are testing if for other types of cancers. Hope and Prayer, that's what it's about. Hang in there, and my best to your partner/ spouse.

      over 6 years ago