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    billwebster wrote on guitarfingers's wall

    Me, 59 yr. old male, doing the LC battle since Feb 2010. See my note to you below about playing guitar, and if you want to read about my nearly 2- year battle, go to www.caringbridge.org/visit/billwebster. Have sold all but my two favorite axes, and an old beat-up accoustic. Didn't want to burden my family with finding my "babies" new homes.
    Good luck with your battle.

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    billwebster wrote on jannlin's wall

    jannlin,

    I AM SO SORRY to hear of the staging and the advanced spreading; and I'm sorry if I sound crass, but her dianosis does not sound good and any chemo/radiation may only prolong the misery. Make sure you trust what the Doctors' say, and if you can, get a second opinion using the test results you've already paid for. I suggest concentrating on "quality" of life, rather than "quantity". Do everything you can to comfort her and make sure to update ALL friends and family. Accept their help...

    To keep from having to repeat my story over and over, I created a blog site listed below: It has been a big help keeping my F/F informed.

    To read "My Story", go to www.caringbridge.org/visit/billwebster ---click the "Journal" tab, then there's a "Sort by: drop-down menu box" shown. Click "Oldest to Newest" to see my journal in chronological order.

    Good Luck, and God bless.

    2 Comments
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      jannlin

      Thank you very much for your comments. I agree with you to focus on quality instead of quantity. My wife biopsy result just came back with her EGFR mutation positive. This is a good news and means that she can take Tarceva in stead of traditional chemo. Hope she responds to the medicine.

      almost 5 years ago
    • jannlin's Avatar
      jannlin

      Winnie's biopsy result just came back and her EGFR mutation is positive. This means that she can take Tarceva orally. Hope she responds to the medicine.

      almost 5 years ago
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    billwebster shared an experience

    Side Effects (Chemo brain): Chemo brain faded when not doing chemo, but fatigue has been my most serious issue. Even when between treatment rounds I just have no get up and go, but at least I'm still here. Have heard from many Lung Cancer patients that each individual is affected differently depending on the specific combo they're doing at the time. All Oncologists are basically making informed guesses for treatment options as Lung Cancer gets about the least attention (you know, you caused it by smoking) although there are a surprisingly number of new dianosis' of non-smoking teenagers. Another 10-20 years and they might get a handle on it.

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    billwebster shared an experience

    Radiation (External radiation (Stereotactic)): Daily radiation for 12 weeks fried my broncial tubes and esophagus. Pain and difficulty swallowing and breathing for two months afterward, but then had 10 really good months. Had the maximum allowable radiation for 3 years, so no more for me. Current prognosis is 4-6 months on this earth at most. Oh well, untreated I would probably been gone summer 2010.

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    User: Elizabeth