• BILLY22's Avatar

    BILLY22 wrote on Gypsyjan's wall

    Hi Jan
    From your post i assume you have resumed normal activities and a new lifestyle. How are you doing i hope all is ok for a 3 year survivor.
    Tell us a little about your 3 year journey. What is your stage and symptoms and chemo, radiation and esophagectomy . You could be a big help to those struggling with EC, Welcome aboard glad to talk to you.
    i am an 80 year old , 15 year survivor of T3N1M0, chemo (5FU,CARBOPLATIN), 26 radiation sessions and a MIE at UPMC.
    All is well with me hope the same for you.

  • BILLY22's Avatar

    BILLY22 wrote on Veroniqueb's wall

    Hi Younglady

    Glad to see you are seeking help on WN. I feel that you can benefit from the experience of fellow survivors who have been down the road and have experienced many of the bumps you will be facing.

    Put this at the top of your journey get a second opinion and a surgeon and hospital that are familiar with esophageal cancer. Find out what type of Esophagectomy the surgeon performs and how many he has performed. Remember you are paying the bills and I would want the best.

    Keep a journal and get all copies of scans and reports from all Dr. visits.

    Keep the WN's informed of your progress and the stage and diagnosis as you make this journey and I think we can smooth out some of the bumps for ya'll.

    Can we help you?

    I was stage T3N1M0 and had Chemo and Radiation and a MIE at UPMC 15 years ago and still going strong.

    From an 80 yr. old thankful survivor.

  • BILLY22's Avatar
  • BILLY22's Avatar

    BILLY22 wrote on Emily435's wall

    Hi Emily

    Tell him we are here to help. I was a healthy 65 year old also, now 15 years later still in good health. I feel you can do the same.

    I had chemo (chemo-Carboplatin & 5FU) and 26 radiation treatments which eradicated my tumor completely. I then had an MIE Esophagectomy at UPMC.

    A 80 year old EC survivor

    1 Comment
    • Emily435's Avatar
      Emily435

      You are an inspiration Billy! It’s so good to know you are here for us. Thanks so much.

      3 months ago
  • BILLY22's Avatar

    BILLY22 wrote on Emily435's wall

    Hi Folks
    We hope we can help guide you thru this maze of EC and give you a jump start to survivorship. The team here has experienced most of the symptoms of EC and can walk you thru then
    hopefully.

    It is important that you get a second opinion and keep good notes and get reports and dups of all scans that is due you if you ask for them.

    Have you been staged and what type of EC do you have?

    Educate yourself on Esophageal cancer and be your own advocate.

    Lets talk.

    A 15 year T3N1M0 survivor

    1 Comment
    • Emily435's Avatar
      Emily435

      Hi Billy. Thanks for reaching out. My husband is the one who has been diagnosed. He has not been staged at this point. We just found out Monday. His first appointment with the oncologist/surgeon will be Oct 30. Hope to know a lot more then. Any help is much appreciated.

      3 months ago
  • BoiseB's Avatar

    BoiseB wrote on BILLY22's wall

    Hi Billy
    How are you and your lovely wife doing, I was just thinking about you the other day