• BILLY22's Avatar

    BILLY22 wrote on eritrea18's wall

    Hi Pal

    I suggest that you take a recorder(Dr. permitted) take notes and get a medical printout of each visit and dups of all your scans. Don't be bashful they are yours but u need to ask for them. You will need this if you get that second opinion.

    Find out what stage cancer and the chemo/radiation you will be getting.

    Also ask about a med port for chemo normally placed in upper chest which is no big deal.

    Be sure to ask oncologist to test you for the HER2 gene.

    Be sure to keep us updated most of us have been down this road and no doubt you will hit some bumps along the way and we can help you.

    PS. Tell the oncologist you want to be aggressive, looks like you are moving fast.

    A survivor, I was diagnosed Nov 2002 @ 65 now going on 82.

  • BILLY22's Avatar

    BILLY22 wrote on eritrea18's wall

    First you need to get a second opinion and get checked for A drug that targets the HER2 protein, known as trastuzumab (Herceptin), may help treat these cancers when used along with chemotherapy.
    If you have esophageal cancer and can't have surgery, your doctor may have your tumor biopsy samples tested for the HER2 protein or gene.

    A survivor of stage lll (T3N1M0) going on 16 years, all is well.

    3 Comments
    • eritrea18's Avatar
      eritrea18

      Nilly22, Thanks and glad to hear that you are doing well. More healthy years to come. As i indicated i was just diagnosed on April 12. Going to see oncologist on Tuesday and see what the regiment is, over the phone he said that we will be doing chemo. I have a lot of info ready to ask thanks to this website. After learning about the treatment, i will share with my fellow site members and go from there. Definitely going to get 2nd opinion without wasting too much time.

      Thanks for all your help and keep on

      1 day ago
    • eritrea18's Avatar
      eritrea18

      Billy22, sorry for the misspelling of the user name. Thanks again, will update regularly

      1 day ago
    • eritrea18's Avatar
      eritrea18

      Billy22, sorry for the misspelling of the user name. Thanks again, will update regularly

      1 day ago
  • BoiseB's Avatar

    BoiseB wrote on BILLY22's wall

    Billy how is your wife? You both are in my thoughts

  • BILLY22's Avatar

    BILLY22 wrote on LeslieRivers's wall

    Hi Folks

    How can I help you?

    This board has given many folks hope, by sharing our experiences on the EC road.

    A 16 year T3N1M0 survivor, chemo, radiation, MIE.

  • BILLY22's Avatar

    BILLY22 wrote on Gypsyjan's wall

    Hi Jan
    From your post i assume you have resumed normal activities and a new lifestyle. How are you doing i hope all is ok for a 3 year survivor.
    Tell us a little about your 3 year journey. What is your stage and symptoms and chemo, radiation and esophagectomy . You could be a big help to those struggling with EC, Welcome aboard glad to talk to you.
    i am an 80 year old , 15 year survivor of T3N1M0, chemo (5FU,CARBOPLATIN), 26 radiation sessions and a MIE at UPMC.
    All is well with me hope the same for you.

  • BILLY22's Avatar

    BILLY22 wrote on Veroniqueb's wall

    Hi Younglady

    Glad to see you are seeking help on WN. I feel that you can benefit from the experience of fellow survivors who have been down the road and have experienced many of the bumps you will be facing.

    Put this at the top of your journey get a second opinion and a surgeon and hospital that are familiar with esophageal cancer. Find out what type of Esophagectomy the surgeon performs and how many he has performed. Remember you are paying the bills and I would want the best.

    Keep a journal and get all copies of scans and reports from all Dr. visits.

    Keep the WN's informed of your progress and the stage and diagnosis as you make this journey and I think we can smooth out some of the bumps for ya'll.

    Can we help you?

    I was stage T3N1M0 and had Chemo and Radiation and a MIE at UPMC 15 years ago and still going strong.

    From an 80 yr. old thankful survivor.