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    bjsatpeace shared an experience

    Radiation (External radiation ): I am down to 3 more radiation treatments then I will be through with it then will go on anti hormone pills for the next 5 years.I have had alot of swelling and blistering on my breast but it is healing I have managed to work part time during all of this even though I have taken several days off due to severe fatigue as well as colds this winter.

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    • junie1's Avatar
      junie1

      glad to hear things are progressing nicely,, or as good as it can be when we have this horrible disease.. I too worked during chemo and radiation. I'm hoping that your cold weather ends soon,, it has been a strange winter for the entire country!
      I too was on a 5 yr treatment,,took Tamoxifen,, had minimal side effects,, & when i say lttle,, conpared to the chemo,, i could deal with anything that the Tamoxifen handed me! I had weight gain,, but that was about 5-10 lbs,, which i lost when i stopped taking the drug. Went thur the mood swings etc,, but soon figured out how to get into and out of them.. Hot flashes, cold feelings,, wasn't all that bad... I'm about to hit my 20 yr mark ( this June)!!!
      Wishing you good days ahead.,, june

      about 6 years ago
  • bjsatpeace's Avatar

    bjsatpeace shared an experience

    Radiation (External radiation ): although I have had trouble getting to appointments due to bad weather I really haven't had any bad side effects I did swell up for a day or two the first week then it went away so far just a little bit of redness although the nerves in my breast are super sensitive so it gets fun during the day when having to wear undergarments. will be glad when its finished I hate having to drive 110 miles a day monday thru friday for treatments

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    bjsatpeace started following

    User: Lorentina

  • bjsatpeace's Avatar

    bjsatpeace shared an experience

    Procedure or Surgery (Lumpectomy): still have soreness and some swelling but at least the surgery part is over with now to get to oncolongist and whatever treatment they decide

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    • SueRae1's Avatar
      SueRae1

      Hugs, healing vibes and prayers for your recovery.

      over 6 years ago
  • bjsatpeace's Avatar

    bjsatpeace shared an experience

    Procedure or Surgery

  • bjsatpeace's Avatar

    bjsatpeace asked a questionBreast Cancer

    radiation help

    16 answers
    • meyati's Avatar
      meyati

      it can be pretty hard. I live in a place that's a paper tiger. The local ACS and clinics list resources that they don't have. Like transportation-yes vans- yes Okay you call the local ACS- they confirm that you are a cancer patient-that you really aren't an investigator from NYC. Then they call you back- the number they give is for the city bus system so you can ride a bus. Home care-Easy it is the senior meals on wheels. They say that they have temporary homes and lodging for cancer patients. That's Hotel 6. At first I complained-but ACS headquarters don't care- it would make them look like what they really are. I complained here, and I was stared at and told that I was greatly mistaken. I needed counseling-I live 6 blocks from the cancer center. When I had my first appointment with the oncologist, I had a bad feeling, and I wanted a neutral person to go in with me-perhaps somebody that would say, "You misunderstood. He meant so and so." my family would surround me- be biased, etc. The Nurse navigator was paid by the clinic. A person owes their allegiance to whoever pays them.

      I was picked for an ACS survey----the questions about care do not apply to situations like bjsatpeace has or what I wanted or actually went through. Yes I had surgery and radiation-and that's been about it. The survey asked about my connection with the survivor counseling-related to somebody with my type of cancer on the scale of 1-5- some were 1-10. Nowhere did it ask me if I had a rare cancer- where the cancer is-it's on my face.
      They asked about my emotional at that moment. They didn't have any place to say that my mother passed 3 weeks ago. She didn't want me and my brother to know-she has always been twisted and mean. My daughter is staying with the executor of the will-and she over heard him on the phone. She confirmed what happened-she had to promise that she wouldn't tell me or my brother. She immediately called her son, who told me and my son. My son called the executor and it was confirmed. I tried to contact my brother. I can't get hold of my brother-I am now scared that he was caught in the Philippines. I need to go to the AF chaplain, as he has a small book keeping business at Yomotan AFB, Okinawa, some other bases, USMC Camp Butler, etc. Then I was sick all summer from strep (May-Oct), and in Oct. I finally got a doctor that's working with my thyroid. There isn't anywhere to use that to qualify why my health is bad or right now I feel empty and drained. So I'm trying to fill out the survey as best as I can.

      over 6 years ago
    • Roadrunner's Avatar
      Roadrunner

      Greg nailed it of where to go for help. When I was in radiation there were MANY "Road To Recovery" drivers. Also, in our community both hospitals have "motel" rooms owned by the hospitals that are in or close to the facility. I know the cost of them is very low. The ACS in our area also offers help with paying for a place to stay. Right now I cannot think or find what it is called. If you are in a rural area does the aging council provide rides to your care center? Check with them as they may let you ride also. Do you have a veteran in your close family? The veterans in our rural communities have a van that bring veteran's family's to our city for care. Check with the local churches as they may provide transportation. Good luck.

      over 6 years ago
    • Gabba's Avatar
      Gabba

      Call Road to Recovery...you will find them through the American Vancer Society!

      over 6 years ago