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    Bjsj69 asked a questionEsophagus (Esophageal) Cancer

    Chemo after Esophagectomy

    • GregP_WN's Avatar
      GregP_WN

      Check on @welderdan I think he went through this.

      over 3 years ago
    • kashubian's Avatar
      kashubian

      My husband had an Ivor-Lewis esophagogastrectomy in September after DCF chemo and then 25 days of radiation. Today he started FOLFOX chemo. Roughly 2/3 of his esophagus is gone as is about half his stomach. Learning to eat again is still a pretty steep learning curve, dumping syndrome still gets us, sometimes with unexpected foods, too. He is also on Omeprazole and sleeps sitting at approximately 30 degrees yet. It's time to get him a wedge pillow as this seems about where he his settling at. So far he hasn't had trouble with heartburn but a few times. He was diagnosed with Barret's esophagus in March, but was asymptomatic. He does feel "backed up" into his chest if he messes up and drinks with his meal, he should separate eating and drinking by 30 min, but doesn't always remember. Dumping syndrome is the worst, causing him diarrhea and massive drooling, the nausea hasn't ever converted to vomiting, he says he doesn't think he could vomit anymore.

      Have you had a chance to talk again to your oncologist about what else can be done for your heart burn?

      over 3 years ago
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    Bjsj69 shared an experience

    Oh No (Cancer is back/Recurred ): After 6 rounds of aggressive chemo, the only place they could find cancer was in the original tumor residing in the GE junction. This cleared me for surgery and I was able to have the esophagectomy in May. At that point we determined the "obvious" cancer was gone and my fight would be against the microscopic buggers floating around in my system. I had a CT scan yesterday and found out this morning that there are multiple lesions in my liver. The cancer has come back after only 3 months, and quite aggressively, according to my oncologist. With chemo, she is predicting that I have less than a year to live. Our goal...to keep me alive so I can see my youngest son graduate from high school in May 2014.

    2 Comments
    • BoiseB's Avatar
      BoiseB

      These predictions are just guesses I have already passed one expiration date and intend to still be around for my next expiration date (Sept 2014)

      over 3 years ago
    • nicki0920's Avatar
      nicki0920

      @BoiseB is absolutely right. They are just throwing out a guess so they have something to tell you. It makes them look smart if they're right and a miracle worker if you live longer. It is a no lose situation for them. Keep the spirit and keep fighting. If you believe you have an expiration date, you're more likely to prove them right. Do your treatments, eat right, drink enough water, and get enough rest. Try your darnedest to make them look like a miracle worker even if you are the one really doing the work. Who gets the credit from you being around after your "expiration date" doesn't really matter. All that matters is that you are still with us and still fighting. You're in my prayers. I know it has to be an emotional kick in the teeth to hear something like that. Sit down and feel sorry for yourself for a few minutes. Anyone would. But get back up and keep on swinging.

      over 3 years ago
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