• BKWG217's Avatar

    BKWG217 started following

    User: CancerNews

  • BKWG217's Avatar
  • BKWG217's Avatar

    BKWG217 asked a questionBrain and Spinal Cord Tumors in Adults

    My dad was recently diagnosed with GBM, grade IV. I'm looking for hope, support and help about this terrible disease.

    6 answers
    • Cazbah's Avatar
      Cazbah

      Ben A Williams is a GBM survivor of 16 years and has written a book about his experience and the medical establishment. It is very interesting. I downloaded it on my Kindle for $9.99. I do not have GBM - I have grade 3 Oligodendroglioma, but am considered terminal, too.
      He used a cocktail approach that he concocted himself by doing alot of research.
      Anyway, I recommend his book to all GBM patients and their families as well as other types of BT patients (like me) who are considered terminal.
      Do as much research as you can. Knowledge is power.
      The title of his book is Surviving Terminal Cancer: Clinical Trials, Drug Coctails, and ...

      Good luck everybody. Fight the good fight.

      almost 5 years ago
    • Cazbah's Avatar
      Cazbah

      I forgot to add that he also used alot of thestandard cancer medicines we are all using- chemo and radiation, but also supplemented. It is worth a read.

      almost 5 years ago
    • Zacksdad's Avatar
      Zacksdad

      I was diagnosed with a grade IV GBM tumor on my right frontal lobe in June 2010. Luckily for my family, my parents and sister were able to travel to our home for my surgery at Moses Cone at Greensboro. My opinion is the tumor is like real estate it is all about location,location location if his surgeon can get a good amount of the tumor out the better your father can do in post surgical treatment. I was given a year and the longer I lived the more I spread my story of survivorship. I am no one special I just have alot of people praying for me every day and I pray too which I feel helps me cope every day. Even with all this help it is not a dance in the pansies. I look at it this way if I am breathing I am fighting which I am very good at. I can still get my wife to laugh (NEVER GIVE UP NEVER SURRENDER) That is from a movie called Galaxy Quest and it is funny as XXX.If you get chance give it a try.

      about 4 years ago
  • BKWG217's Avatar

    BKWG217 shared an experience

    Oh No (Diagnosed): My dad was diagnosed on Christmas Day with GBM, grade IV. I'm looking for help, support and hope for anyone that is familiar with this disease.

  • BKWG217's Avatar

    BKWG217 started following

    User: GregP_WN