- St Paul, MN
- Member Since Nov 2011
Their Diagnoses (1)
- Survivor: Invasive (Infiltrating) Ductal Carcinoma
- Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 67, Stage II, HER2 Positive: Yes, ER Positive: Yes, PR Positive: No
- View this journey (8 Experiences)
blndescorpio49 wrote on beach56's wall
Hi as others have said get a second opinion. I had a similar diagnosis and had a 3.5 cm tumor when all was said and done (after surgery). I had a lumpectomy with chemo, radiation and Herceptin afterwards. Sometimes surgeons won't do lumpectomies because of the cosmetic results when taking out a tumor from smaller breasts. For example an A cup size breast may not have a pleasing result when taking out not only the tumor itself but margins for safety as well.
I wore a G cup bra prior to my lumpectomy and now after breast reduction on the opposite side I wear a 36 DD perfectly. Obviously, they took out a lot of breast tissue but I still have a normal looking breast except for a divet in the scar area.
Ask questions about why they want to do a mastectomy. I had a woman surgeon and she never even suggested it.
Being scared is part of the diagnosis and even after almost two years I have my moments when that fear creeps into my mind. Find support where ever you can and accept it! My kids were 30 and 26 when I was diagnosed and the younger one was in denial about it and didn't come around much at first. But they both learned to accept it and my fears.
One thing another survivor told me and I found to be true is some people will disappear from your life because they can't deal with it. Yet support will come from the most surprizing sources.
Good luck and may God bless you.
blndescorpio49 wrote on Nocmom's wall
Hi, finished treatment 6 months ago. Had the lumpectomy first then chemo for 5 months and then radiation. After that I finished up the year of Herceptin treatments. I've had two clear mammograms and onc check-ups since. I didn't have nausea or chemo brain but pretty much had the rest of the side effects you had. Plus I had rashes and edema in my hands and feet. Today more than 15 months after I finished chemo I have neuropathy in fingers, toes and the muscles in my rib cage area. I also have thin, peeling finger nails from the Herceptin. My hair is growing about half the rate it used to and is thinner and grayer but it's mine! I color it and found some wonderful stuff by Joan Rivers to hide the wideness of my part! LOL
Life is good! I was able to work all through treatment but I do a sit down job as an OB medical coder. I missed only 4 days of work in a year of treatment. That was due to low red blood cell counts and I had transfusions for that. Now I mostly don't think about the cancer except when someone dies of it that I know. Then I get a chill down my spine. I try to live each day to the fullest and not plan to far ahead. I found that faith, prayer, friends and family helped me make it through this. I try to reach out to others who are going through this as well.
II hope things will continue you to get better for you and I'd be happy to "talk" if you like. God bless you!
blndescorpio49 posted an update
Does the fear associated with mammograms ever go away? I'm having my second post chemo/radiation mammogram on Thursday. Can't shake the nagging fear. It's my first after completing Herceptin. Flying solo with only tamoxifen is scary business! Mostly I'm confident ahd a checkup with my onc on December 30th. Everything good there! But still the nagging fear.....
blndescorpio49 shared an experience
Other Care (Breast reduction surgery): Had breast reduction surgery on left breast so it matches up with the post-lumpectomy right breast. A month out from surgery and very happy with the results. It looks good and after I had the surgery I noticed that nagging chest/rib ache was gone. Must have been the unequal size.
blndescorpio49 shared an experience
Other Care (Am taking tamoxifen.): Have hot flashes,again. (I thought I was with all that). Other than that nothing much for side effects. Am having breast reduction surgery on the other side so I "match" in December. Always wanted to be smaller. Will be somewhere between D and DD cup. Had port out a couple of weeks ago. Getting back to normal!