• Bloodproblems' Avatar

    Bloodproblems asked a questionMultiple Myeloma

    I'm getting this metal taste in my mouth from treatments, nothing tastes good.

    • Bengal's Avatar
      Bengal

      Some days, when the side effects were at their worst, I didn't eat - couldn't. On other days I forced myself to eat whatever appealed to me. I ate alot of whitehead chicken, cereal, vanilla milkshakes. One of the nurses recommended Carnation instant breakfast as a less expensive alternative to nutrition drinks like Ensure. On the days when the side effects were at their lowest I tried to load up on fruits and vegetables. I did lose some weight but I was overweight so wasn't overly concerned. You just do what you can.

      3 days ago
    • Bengal's Avatar
      Bengal

      God, I hate spell checker. That was supposed to be "white meat" chicken. I don't know if there's any such thing as a whitehead chicken. Lol.

      3 days ago
    • Allisonsue2's Avatar
      Allisonsue2

      I was advised to eat & cook with plastic utensils cuts down on metal taste. When I was out I made sure food wasn't cooked on metal grill/pan. Tried to bake in glass/ceramic dishes. Some days it worked and some it didn't. Just do what works for you and I also drank alot of protein drinks. God Bless you

      3 days ago
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  • Bloodproblems' Avatar

    Bloodproblems asked a questionMultiple Myeloma

    My family and I wish all of the WhatNext family a happy thanksgiving!

    4 answers
    • JaneA's Avatar
      JaneA

      I'm a day late, but I hope that everyone had a nice Thanksgiving day and will have a wonderful weekend.

      7 days ago
    • andreacha's Avatar
      andreacha

      To All --- I too am late. I wish for everyone to have wonderful Holidays and, hopefully, have family and friends close. It's that time almost to reflect on all we have been through for this year and thank Him for his generosity. We are here and hope and pray that 2020 will be a better year for our entire Community.

      7 days ago
    • GregP_WN's Avatar
      GregP_WN

      Thank you from Donna and me, and the whole WhatNext team, we appreciate you being a part of our community.

      I'm two days late on this but still I hope everyone has a great extended weekend!

      6 days ago
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  • Bloodproblems' Avatar

    Bloodproblems shared a photo

    Wall_dear_mind_stop_thinking

    This is me every night trying to tell my mind to go to sleep!

    1 Comment
    • MiriamMarino's Avatar
      MiriamMarino

      I have to wait a couple of days after steroid infusion to be able to sleep.
      Is it the steroids interrupting your ability to sleep?

      10 days ago
  • Bloodproblems' Avatar

    Bloodproblems asked a questionMultiple Myeloma

    Do you get anxious about leaving home and traveling to relative's homes while in treatment?

    4 answers
    • myb's Avatar
      myb

      I was scared that I wouldn't be able to attend my niece's wedding which was the Saturday after my 3rd round of chemo for colon cancer that I finished on Thursday. My first chemo was awful with so many side effects of which the worst was constipation that had me keeled over in bed that Saturday that I missed the viewing for my high school friend who passed from pancreatic cancer. The 2nd round of chemo still had me constipated but nearly as bad but definitely still fearful about attending the wedding. Thankfully by the 3rd chemo, we got the meds right, so not constipated, but just easily tired. I planned a nap in between the church and the reception and ended the evening earlier than scheduled, but I made it.

      12 days ago
    • MiriamMarino's Avatar
      MiriamMarino

      I ask for a break in treatment if I wish to travel.

      10 days ago
    • annetteOR's Avatar
      annetteOR

      We're all taking different chemo and at different places in our treatment, so your mileage may vary. I wear a mask for all air travel, from the time I get out of my car at the airport until I get in a car at my destination. Per my doctor's advice, I change them every two hours. I make sure to take my vitamins, including extra vitamin C, in advance of travel. I get a flu shot at least two weeks prior to holiday travel. In spite of my precautions, when I travel every holiday season I typically get a cold/sinus infection/upper respiratory infection at some point during or after the trip. I'm a multiple myeloma (chronic blood cancer) patient and will never be over this, so it's worth it to me. (And I don't get sick if I travel during summer.) Ask your doctor for advice; should you or shouldn't you, what precautions you should take, and what to do if you need assistance while away. I'm a stem cell transplant patient, and have an emergency number for the transplant center that I was able to give to an urgent care center for a consult about next steps given my situation. If, after having precautions and plans in place, it still doesn't feel like you'll be able to enjoy yourself, maybe skip it until another time. Best of luck!

      9 days ago