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    Bloodproblems asked a questionMultiple Myeloma

    Do you keep your cancer to yourself or do you wear it on your sleeve?

    10 answers
    • Bengal's Avatar
      Bengal

      I kept it to myself and closest family at first; until I had time to process the diagnosis myself (still not sure I've successfully done that. I'm almost three years out). I don't advertise it but I've learned not to flinch every time I hear the word "cancer" and I will talk about it if anyone wants that conversation.

      4 days ago
    • Created07's Avatar
      Created07

      I didn't talk about the first three much. The first one, endometrial, is a very private one. Thank goodness for 'What Next' because I have never felt so alone. The next one, breast, has a whole sisterhood. But still it was mostly between the 'sisters', family and 'this' family. The last 'non-hodgkins', the hair was gone. My sweet son-in-law bought me a lovely (expensive) wig. When I wore it out, people would look, turn and whisper. While in the hospital the first time, a precious little nurse ordered me a $20.00 pale pink bob. That changed Everything. everywhere I went it opened conversations. That was wonderful. I had no idea how many cancer patients were hungry just to be able to talk to someone who understood. Each one now knows about one of my greatest blessings....What Next. Oh, I said the first three. The third one was found by my plastic surgeon and cut out by my dermatologist..malignant melanoma...end of story:)

      3 days ago
    • MiriamMarino's Avatar
      MiriamMarino

      When I speak with my family and friends, I tell them I don't wish to speak about my cancer and the treatment for it, and that I wish to hear about what's happening in their life.

      about 8 hours ago
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    Bloodproblems asked a questionMultiple Myeloma

    I've read about chemo brain and I've heard the term chemo-fog.

    6 answers
    • Bengal's Avatar
      Bengal

      I did read in an article that some are trying to attach chemobrain to PTSD as another side effect of psychological trauma. I don't buy it. I believe that all the poison they pump into us to try to kill the cancer has got to have an effect on brain cells. That in itself is, of course, a type of trauma but physiological like brain injury. We need to work to retrain our brain to focus.

      5 days ago
    • GregP_WN's Avatar
      GregP_WN

      I have dealt with this for 32 years, that's how long it has been since I've had chemo. 32 and 31 ago. Since then I've been put to sleep with anesthesia so many times I can't remember. That also has an effect on it. As far as the question, generally, they are considered the same thing.

      4 days ago
    • andreacha's Avatar
      andreacha

      For this reason I subscribed to and just received my "Brain & Life" magazine. It covers all info about your brain and has some good advice to help our situations. It is published by the American Brain Association and the American Academy of Neurology. There's no charge.

      4 days ago
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