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    bluebirdflys shared an experience

    Decision Point (To fight.): As I see my grand babies i even want to fight this cancer even more everyday.Its crazy to know the financial burden it takes to do that.Its just not fair.

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    bluebirdflys shared an experience

    Loss (Job): 5 years ago,right before i started at my job I kept getting ill.I went to the doctor and he sent me right away for a lymph node biopsy.That test came out negative.So I started work for a great company in medical field.5 years working I started noticing changes in my body and staying sick all the time.So my daughter took me to the E.R hear in Oklahoma and come to find out then and that day I had stage IV Mantle Cell Lymphoma.The doctor explained he new I have had it for about 5 years and It will be a fight for my life and the doctor and Patholigist had missed it 5 years ago.

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    bluebirdflys shared an experience

    Side Effects (Lymphedema): Knowing I have Immune cancer and its in my bone marrow shuts down my way of fighting any infections around me.I shouldnt have to stay alone to keep from getting sicker,but I have to because of the kind of cancer I have.

    2 Comments
    • dboland30's Avatar
      dboland30

      While you do need to limit contact, I was able to get out and about through most of the treatment, except when they did the last step prior to the transplant, when they almost eliminated my immune system completely (intentionally) But 3 weeks after the transplant, I was around people again, and suffered no ill effect.

      being neutropenic does increase your susceptibility but it can get better!

      about 6 years ago
    • fancyauncy's Avatar
      fancyauncy

      Have you tried wearing masks out in public? I HATE being the "center of attention", so was very reluctant to wearing them, but post-transplant was told absolutely necessary for at least 6 months, if I wanted to get out! I finally have gotten over looks, questions and even the eye rollers and have actually been able to educate strangers, who assume I'm just paranoid, so I feel good when I'm able to explain about immune suppressed. At least you can still continue with life outside of your home. :) If your Dr doesn't have masks--I've ordered them on Amazon.

      about 6 years ago
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    bluebirdflys shared an experience

    Drug or Chemo Therapy (Chemotherapy): As a 44 year old woman,still young in age,with 4 grandbabies and knowing I have to fight for my life including dealing with the side effects of both chemo regements.

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    bluebirdflys shared an experience

    Oh No (Cancer has spread/Metastasized): Hi,my name is Tina Ramsey.I`m 44 years old and I was stricken to find out i have stage IV Mantle cell Lymphoma B cell.

    1 Comment
    • dboland30's Avatar
      dboland30

      Tina,
      Hopefully you've found by now that Stage 4 mantle cell isn't the same as stage 4 in other cancers.

      In my case, I had stage 4, because it was on either side of my diaphragm, but it remained in my lymph nodes and bone marrow.

      I was 53 when diagnosed. The fact that you are only 44 is more good news.

      My doctors opted for a regimen of chemo treatments, culminating in an autologous stem cell transplant (patients own stem cells)

      Happy to say I'm cancer free for going on 3 years, and except for a bit of chemo induced neuropathy, pretty much living a normal life again

      Keep your chin up, and stay positive, you can beat this!

      about 6 years ago
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    bluebirdflys shared an experience

    Oh No (Health insurance issue): There are so many bills and copay that I struggle with everyday to try to survive for myself and my family that times I feel I have no one to help.I wake up daily and keep praying that i can soon rest from so much and many to be free`d from, but I know that is impossible.My so called Obama health care give me limits of my doctors appointments and chemo care.There should be no limits of trying to save my own life.