• GregP_WN's Avatar

    GregP_WN wrote on Blueeyes1019's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page, Take a look at it to get you started on some information. You will notice at the left side of that page a listing of most types of cancer. You can scroll down to find your diagnosis. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/

    If you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

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    GregP 3X Survivor
    WhatNext Community Mgr
    ACS Voice of Hope Speaker

  • kalindria's Avatar

    kalindria wrote on Blueeyes1019's wall

    Hi Blueeyes1019 and welcome to WhatNext.com! I'm so very sorry to hear of your diagnosis but you've found a great place to ask questions, get information, and share experiences. I was stage IV at my diagnosis too and I'm still here more than five years later so please know there's still plenty of hope.

    A few months ago, I recorded a series of videos for WhatNext about my cancer journey. You may find them helpful. I've included a link at the end of this message should you wish to check them out.

    WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

    https://www.whatnext.com/video_pages/ovarian_cancer_videos_kalindria

    In the meantime, I'm here if you have any questions or want to chat.

  • macfightsback's Avatar

    macfightsback wrote on Blueeyes1019's wall

    Welcome Blueeyes1019,
    I am glad you are on this site. It is a great place for information and support. I am sorry your wife was diagnosed with Ovarian Cancer. She was diagnosed early stage which is preferable to late stage. Even early stage can have some difficult issues. Has something changed recently? Perhaps she is having a reoccurence. It would be helpful to know more details about what you are struggling with. I always recommend to caregivers that they encourage their loved one to join our site. Your name is anonymous unless you choose to share it so if privacy is a concern, it is not an issue. I have a friend who was diagnosed with Ovarian Cancer a few years ago. She was early stage too. She received treatment and is cancer free. Her husband has cancer and goes in and out of remission. She shared it is much more difficult to be a caregiver than a patient. I asked her why. She said as a caregiver it is hard to know how to help. I share this to let you know that yes, it is even harder being a caregiver than having cancer. Feel free to ask any questions. We are here for you.

  • willie's Avatar

    willie wrote on Blueeyes1019's wall

    Blueeyes, These are some things that we have learned over the years:
    Dryness. Total body dryness. This was (is) a big issue on a daily basis for my wife when she had IV chemo and now as she is taking oral chemo. Here are some things that we have learned from a number of people over too long a time.
    BIOTENE This stuff is wonderful for her mouth. Get the rinse-and-spit bottle and the lozenges. Plus, they make a toothpaste! Goods stuff.
    RESTASIS This is a prescription from her ophthalmologist for her dry eyes.
    EYES: Also, we learned that it is OK to mix Restasis with Systeane Ultra drops and Systane Nighttime ointment. The 3 are working well against the dry eye.
    LANOLIN LOTIONS Put it on after a shower while you are still damp.
    SHEA BUTTER in chap stick.
    COCONUT OIL This is wonderful for sex. We started using it years ago during menopause---still works great. Use liberally.
    WATER Keep a bottle handy and drink it.
    LIQUID BANDAGE Pat gets cracked finger tips. Use this to allow them to heal.
    RUBBER GLOVES Get some elbow-length ones for washing dishes to keep your hands out of soap and water.
    NO SOAP Pat uses soap only on her arm pits and crotch. Everything else gets MOISTURIZING CLEANSERs.
    LOMA This is an after-shampoo rinse to help her hair, from Amazon. She tries to shampoo as little as possible, like twice a week.
    PROBIOTIC: The chemo is hard on her gut. The probiotic helps keep those microbiomes in there to aid digestion. Talk with your doc about it.

    It took us too long to learn this because this dryness is torture by increments. So save yourselves the aggravation and get ahead of the curve. Try some of these products and make life more pleasant.
    Compression stockings. Pat thought (for too long) that those ugly hospital or airplane stockings were the only thing out there. Then she started looking and found some very attractive ones, that work! Why put up with the swollen ankles if you don't have too? Buy yourself or your sweety some as a gift.

  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on Blueeyes1019's wall

    Hi Blueeyes1019, welcome to the WhatNext site. I am sorry your spouse/ partner,was diagnosed with ovarian cancer four years ago . Is this a recurrence? Unfortunately , recurrence is common with later stage ovarian cancers but csn also happen occasionally even when the cancer is diagnosed in the earliest stages. Women can and do reach NED with further treatments. I noted the experience of surgery and wish your partner/spouse a speedy and successful recovery. The journey with cancer is a very difficult one both for survivors and their loved ones. This site in addition to providing a good source of information provides the additional support all survivors and caregivers need. Please look the site over. Ask any questions using the question tab and visit the pin board. Perhaps you could help answer some of the posted questions and help give others support also. WhatNext was a lifeline for me when I was diagnosed with later stage ovarian cancer in 2013 and I hope it will benefit both of you also. Wishing you always better days ahead, and here to talk anytime.

  • Blueeyes1019's Avatar

    Blueeyes1019 shared an experience

    Procedure or Surgery