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  blueorchid started following

  Question: Time to die

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  over 5 years ago
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  blueorchid started following

  User: cuddles456

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  blueorchid started following

  User: slatebreak

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  blueorchid started following

  Question: Mom put back on chemo, extremely ill.... 1 lymph node=terminal?

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  over 5 years ago
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  blueorchid asked a questionColorectal (Colon) Cancer

  Mom put back on chemo, extremely ill.... 1 lymph node=terminal?

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  over 5 years ago

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    blueorchid

    Hi Zubsha!

    Thanks for your reply! Her type of cancer was chemosensitive the first time through. They had her on 5fu and oxilaplatin, and she was NED and CEA was down after her HIPEC surgery. She did not have chemo for over a year. The small tumors in the abdomen are seeding from her hipec surgery, which is common. So its just 1 pesky little lymph node we need to deal with.... They've put her on a stronger chemo this time, and we'll see. I think what they will do next is give her the chemo, and then when she gets unhooked from the infuser, they will not wait, and start IV fluids then. Hopefully that will help her out. I don't know if its mutation positive or not, but she does. It was sent away to a geneticist, but that was a while ago and I honestly can't remember the result lol! I'm thinking it was not positive, but can't be sure right now. I don't know of anywhere in Canada I could consult, but I will be looking :)

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    over 5 years ago
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    BarbarainBham

    Blueorchid,
    Has anyone considered medicinal marijuana for her nausea? I've heard it helps when other nausea medicines don't.

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    over 5 years ago
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    blueorchid

    BarbarainBham :)

    It is something we are considering. There's a ton of red tape to it here in Canada but I think shes going to apply and at least see how it works. Thanks!

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    over 5 years ago
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  blueorchid shared an experience

  Procedure or Surgery (Surgery): She had Hipec surgery on jan 23 2013. The surgeon was happy with the results, saying she came through it well. He did another resection of the bowel bc it looked like there may be some seeding from the previous surgery, gave her a total hysterectomy bc it looked like a few small spots on her ovary might be cancerous, more of her omentum and peritoneum, her galbladder (bc it was, quote, in the way lol) She was doing great when they took her out of surgery. Much better than the first. The first resection, she was in sooo much pain. She'd wake up enough to say Pain. And mom is not like that at all. She has a very high tolerance to pain. But this time it looked like her pain was being managed well. Everything was going good until she got a little too sleepy.... and then she stopped responding to people.... she couldn't stay awake, couldn't move well, wouldn't follow directions... they rushed her to MRI thinking she had a stroke. Long story short, they managed her pain just a little too well..... mom and I are very sensitive to meds, and even though we told them that, they had never seen someone so sensitive. Turns out she was too doped up to do anything.... they cut her down and she came back around. She left the hospital on nothing more than children's advil...... lol Recovery was long. She was very weak and had to result to using a wheelchair for long walks or a walker for shorter walks, or my step dad's arm. She never fully regained her strength in her legs. She did get stronger, and relied on the walker less, but never as strong as before. But she is one strong lady. She went to physio a few times and did what they asked her to do and was using the walker less and less. The dr told her recovery from the surgery would take at least a year.

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