• blujeanlady's Avatar

    blujeanlady wrote on ChildOfGod777's wall

    Hello and Welcome to What Next. I am HER2 positive too. Hoping you find some answers to the origin of your cancer. I had a tumor the size of a blueberry removed in July 2016. My cancer originated in the Ducts of the breast. I completed chemo in December and I am in radiation. Today I just completed Round 11 of radiation,

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    blujeanlady asked a questionBreast Cancer

    Cured? Remission? Cancer Free?

    17 answers
    • Carool's Avatar
      Carool

      geekling, I, too, hope your skin cancer removal goes well. The lesion sounds tiny. Hugs -

      25 days ago
    • BoiseB's Avatar
      BoiseB

      When my esophageal cancer came back. The Dr. said let's see how long were you in remission? So he calculated remission from the first clean scan. The first clean scan after the return he said NED for two years Then when he was looking for research grants he started saying "cancer free" and cured. My new doctor simply said "you are not likely to die of cancer "Humm gues I had better start watching my cholesterol. I think those terms mean what your Dr. wants them to mean.

      24 days ago
    • Songwriter's Avatar
      Songwriter

      Chemo can definitely give us more time however the chemo only kills and doesn't heal. It does nothing about the reason we have it and until that we are stuck with the killing.

      24 days ago
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    blujeanlady asked a questionBreast Cancer

    Cured? Remission? Cancer Free?

    4 answers
    • fiddler's Avatar
      fiddler

      Here's my (unprofessional) take:
      When the tumor is removed, we're cured.
      After a certain amount of time passes we are in remission (from new tumors).
      When we don't develop more tumors we're cancer free.

      25 days ago
    • gpgirl70's Avatar
      gpgirl70

      I will consider myself cancer free when I can have a few hours without thinking about it. Unfortunately lymphedema, neuropathy, joint/bone pain from AI are constant cancer reminders. The term remission sounds temporary so I'm not a fan of that term. Cured would be nice, but with my staging I'm not sure I'll ever feel cured. I go with NED right now because I need to have it in my brain that the cancer is at bay to keep my fragile spirits up. My oncologist uses NED to describe my status as well.

      25 days ago
    • artsylady's Avatar
      artsylady

      I have never used any of those terms to describe my cancers. I have simply said "I'm a cancer survivor," and leave it at that. Those terms usually only come into play when it's obvious you're going through cancer treatment. Your bald, much thinner or vomiting.
      Presently, I don't look like a person who has had cancer, so I don't bring it up. There have been times when I have wanted to say "none of your business," but people simply mean well... most of the time.
      During one of my cancer treatment rounds, I was bald and skinny, and it was our anniversary. My husband wanted to take me out to eat in the worst way. So I agreed. He made reservations at a the Drawing Room room at a lovely table next to the fireplace. There were probably only 4 other couples in the room. I became very warm (it was winter and I had worn wool and cashmere) and I took off my velvet hat. I was bald. I felt much better.
      A few minutes later the Maître 'd came over and whispered something in my husband's ear. I was puzzled.My husband turned bright red with anger and I could not figure out what was wrong. It seems that one of the other couples had complained that I made them uncomfortable because I was obviously 'dying.' (their words)
      He tapped his glass with his knife and said "Excuse me for interrupting...It seems one of you is uncomfortable with my wife's bald head. I'm sorry. But my wife is not dying, she is undergoing treatment for breast cancer - she is a survivor, she is not going to hide, she is beautiful, she is the mother of our two sons and my wife of 20 years. If you are uncomfortable, you should leave, because we are not. Thank you. I hope you enjoy your evening as much as we are enjoying ours."
      I'm not sure who was more shocked the Maître 'd or the obviously guilty couple. One of the other couples, generously paid our check and the other couples wished us well.
      That is how I became a 'survivor.'

      22 days ago
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    blujeanlady asked a questionBreast Cancer

    Do you say Positive affirmations?

    11 answers
    • Rollercoaster's Avatar
      Rollercoaster

      I always say that cancer doesn't have me and I am going to outsmart it. The reason I say that one is because I have been fighting it for years and several times the treatments stopped working because my oncologist says it gets used to the treatment or gets "smart". I just think of myself as even smarter and am always going to attack it a different way with good results. I am also a religious person and always ask Jesus and the saints to help me fight this evil. So far it has always worked.

      about 1 month ago
    • Ashera's Avatar
      Ashera

      All through chemo rounds - I used A Grey's Anatomy, Derik Shepherd's "It's a beautiful day to save lives!" and then when I balked - put imaginary blinders on and thought...'You've got this." and then simply zoned out.

      about 1 month ago
    • Ejourneys' Avatar
      Ejourneys

      Emotional context behind the words is also a factor. I have a thick 3-ring binder filled with the side effects logs I gave my oncologist during chemo. On the cover of the binder I have a "F#%k Cancer" graphic, but it's a variation on the Rosie the Riveter "We Can Do It!" poster. It shows a strong, calm, determined woman rolling up her sleeve, and that's exactly how I felt. That made the words "F#%k Cancer" into a confident declaration, rather than an angry outburst. During my chemo infusions I listened to epic music.

      about 1 month ago
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