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    User: CancerNews

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    bnaht posted an update

    I'm so confused as to where to find all the information so I could be prepared

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    bnaht asked a questionLiver Cancer

    Where do people get information about different treatment options? I want to self educate myself, but I do not know where to start looking.

    7 answers
    • outdoorboywa's Avatar
      outdoorboywa

      All of the above advise is great! I'll add my own 2 cents.

      There is a great resource for doctors called UpToDate, it is a service that compiles and presents the most up to date research on any medical copy. Some health centers may be able to give you access through their libraries. It is especially helpful if you have a less common kind of cancer that doesn't have standard protocols. The research is academic but presented for doctors to be able to use it.

      If you have a university nearby, or possibly even a community college, you can access many journals online at their library, take a thumb drive with you, you can down load them and read them on PDF later.

      Use the information from the NCI, NCCN, PubMed, etc. for a base of knowledge. Find out what cancer center is leading the field in you particular diagnosis. Get educated and get second and third opinions. Consider the relative benefits of different treatments against the longterm side effects and quality of life. Keep a notebook of the questions you want to ask and the conversations and answers that doctors give you.

      Blessings,

      Tim

      over 4 years ago
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      bnaht

      Thank you to all of you that have answered so far. I appreciate your support and guidance.

      about 4 years ago
    • larryjay's Avatar
      larryjay

      Someone earlier suggested "UpTo Date". It is amazing! My experience is that most other sources provide (redundent) information a mile wide and an inch deep. Some time ago a bright young Radiologist @ Memorial Sloan Kettering in NY sent me various reprints giving detailed answers to my questions. He got them from "up to date", to which he subscribed. I went to their website myself (www.uptodate.com). I was impressed and took advantage of a "30 day all access pass", which at the time cost $44.95. During that time I downloaded and printed a ton of info, including other health topics. I now have files about a foot thick (only a slight exageration). As I am approaching two years from diagnosis, I intend to do the same again for additional information in the comming few days.

      Each topic starts with an overview of the condition, within which are numerous links to relevant sub topics, which again link to further sub topics. You can drill down to great detail. The language is typically understandable, though I would sometimes need to review other topics for a clear understanding.

      I can't recommend another source more strongly, for you, or any others seeking information.

      Best of luck,
      larryjay

      P.S. would love to read your feedback if you explore it.

      about 4 years ago
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    bnaht asked a questionLiver Cancer

    treatment

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    bnaht shared an experience

    Procedure or Surgery