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    BobbyG wrote on len_hawkins908's wall

    Thank you for the reply Len. I am curious about the effectiveness you have had with the drug. How are the side effects treating you long term?

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    • len_hawkins908's Avatar
      len_hawkins908

      Bobby, I think 1 of the first things needed for comparison is the dosage.
      I'm 180lbs. Have been on 37.5 mg of sutent since May 2011. Since my diagnosis my Aunt
      was diagnosed with renal clear cell too. She was probably 150lbs and took 50mg of sutent.
      Our side effects were tremendously different. I have what I would describe as warm feet. Not really burning but warm. Better in winter have noticed. Palms will get warm feeling if I use hand tools for an extended time. Oh and WHITE hair. You'll get hey! Kenny Rogers or Col. Sanders. Last but by no means least. Diarrhea! Dr's. prescribed a powder that I mix with fruit juice once a day, it seems to help a bit. Buttermilk or yogurt once a day. Leafy greens and other fruits and vegetables at times do not seem to digest any what so ever. Whoooo. that's about it for now. If you have other ?'s feel free to ask. Len

      almost 4 years ago
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      len_hawkins908

      OH Yea! since completing 28 rounds of radiation all of my scans have been no new growth.
      At diagnosis I was graded as lV, mostly because I lost my left kidney to Wilm's tumor when I was 6.

      almost 4 years ago
    • len_hawkins908's Avatar
      len_hawkins908

      one more oh yea. My Aunt's side effects were lots worse. her palms and feet were sore and cracked. Her stomach was upset most of the time. We both had periods with different seasonings and foods tasted strange.

      almost 4 years ago
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    BobbyG asked a questionKidney Cancer

    Anyone with experience using Sunitinib to fight Advanced Kidney cancer.

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    BobbyG shared an experience

    Drug or Chemo Therapy (sunitinib): Just starting drug today so all experience will come in the future.

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    • NAN67's Avatar
      NAN67

      My husband has been on this chemo, Afinitor, and Votrient. Of course, with each chemo comes a different set of side effects. He's been on each a relatively long time with different outcomes. When one chemo is exchanged for another, it's typically because he's grown intolerant of the side effects vs them not "working". He has stage IV RCC and diagnosed 3 1/2 years ago. He has stayed on each chemo longer than the average cycle and I have yet to see any consistent results (good or bad) on each scan (avg 3-6 mos between). In other words, we haven't been told any are "not working". The side effects of each also seem to rotate. He'll have a specific few, those become less frequent, but exchanged with new ones. We've gotten to the point where we say "Oh, I remember that one!". He seems to keep working through each one and refusing to let any side effects keep him down (for long :) Wishing you the best!!

      almost 4 years ago
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