• BradB's Avatar

    BradB shared an experience

    Other Care (Dieticians): Probably the best thing I have done over the last three years of living with an incurable disease is to meet with a dietician. I take an enormous amount of supplements and exercise at least an hour per day. Though I am still a busy working husband, father and musician I haven't been ill, and I have been able to maintain at least 10 miles of running per week and 1 mile swims. My supplements and a healthy diet have kept me remarkably healthy, which I was prior to diagnosis.

  • BradB's Avatar

    BradB shared an experience

    Radiation (cyberknife): My cyberknife was for five consecutive days for 2 hours each time. I became very sick following the first treatment and vomited repeatedly on the train ride home. After that I didn't really have any side effects, just some fatigue.

  • BradB's Avatar

    BradB shared an experience

    Side Effects (Constipation): The chemo drugs constipate me. I'd never had constipation before but I found that to be one of the more painful side effects. Took three days each time to fade, gave me very painful hemorrhoids.

  • BradB's Avatar

    BradB shared an experience

    Procedure or Surgery (Colon surgery (colectomy or hemicolectomy)): I had colon resection surgery when I was 41 following diagnosis. The surgery went smoothly. They removed my sigmoid colon. I was hospitalized for 3 days and recovered at home. The most challenging part was having my abdomen heal.

  • BradB's Avatar

    BradB shared an experience

    Drug or Chemo Therapy (Chemotherapy): I have had both Folfiri w/ Avastin and Folfox. I found both of them very challenging and am still suffering from neuropathy from Folfox

  • BradB's Avatar

    BradB shared an experience

    Clinical Trial (I have been referred for TAS-102)

    1 Comment
    • Terre's Avatar
      Terre

      I just started my clinical trial utilizing TAS-102. Please let me know if you are accepted into the trial. I could share some of my experiences and side effects if you would like. Good luck!!

      about 4 years ago