• Braids' Avatar

    Braids started following

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    Braids asked a questionEndometrial (Uterine) Cancer

    Experiences with Ifosfamide/Mesna

    • GregP_WN's Avatar
      GregP_WN

      Hi Braids,

      Here is one conversation from a few months ago dealing with Ifosfamide but not the combination you stated. https://www.whatnext.com/questions/vincristine-ifosfamide-doxorubicin-side-effects

      almost 4 years ago
    • LAllen's Avatar
      LAllen

      I found the combination to be easy on the body and hard on the tumor. I did not get nausea, there was no change in appetite. Tumor did shrink. I pray it works for you.

      almost 4 years ago
    • anskysue's Avatar
      anskysue

      I had docetaxol and gemzar so I can't comment on those specific drugs. However, I found Ritalin to be especially helpful in keeping my mind sharp. And I took Claritin and Zantac daily (started in my 8th round of chemo) and those made a HUGE difference in lessening the side effects from chemo. I wish I had known about that combination much earlier. My entire family was in shock about how much better I felt after starting those. Good luck!

      almost 4 years ago
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    Braids asked a questionEndometrial (Uterine) Cancer

    PET Scan for Leiomyosarcoma in uterus and vagina

    5 answers
    • GypsyJule's Avatar
      GypsyJule

      I agree completely with Shelby and Greg. File an appeal with the insurance company. My dx was Uterine Carcinosarcoma - a combination of a carcinoma and a sarcoma. I have had a PET scan that was paid by my insurance, United Healthcare. Since treatment, I've only had CT scans, but there didn't appear to be a problem with the PET. You may even want to check with the hospital/doctors office to help you with the appeal. My insurance originally denied a hospital stay while I was in treatment and had a 102 degree fever. The oncology department wrote the appeal, and it was paid. (They want the insurance money, so they may help you get it!) Good luck!

      almost 4 years ago
    • Deidre's Avatar
      Deidre

      I agree also, file an appeal with insurance. I have done that successfully before. I just had a PET scan and my insurance was billed thousands of dollars, so it is expensive. But one of my doctors said he didn't think a PET was any better than a CT scan anyway.

      almost 4 years ago
    • Joachima's Avatar
      Joachima

      My uterine cancer was also a sarcoma and I have Aetna insurance. My gyn oncologist wanted a PET Scan following a suspicious area found on a CAT Scan. Aetna refused, and my doctor appealed & persisted through phone calls until finally it was approved, also to plan radiation treatment. I was told that PET Scans are not an approved source of detecting sarcoma. I was further told that Aetna would consider paying only as follow up after the CAT Scan showed something suspicious, as it was in my case.

      almost 4 years ago
  • Braids' Avatar

    Braids shared an experience

    Radiation (External radiation ): Radiation was for breast cancer. Was not as fatigued as I thought I would be. By 24 session was getting very burned under my arm despite use of creams. Now I will be undergoing radiation for secondary vaginal tumor. Not looking forward to the burning in that area!