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    User: GregP_WN

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    braintumorz asked a questionBrain and Spinal Cord Tumors in Adults

    Are there any people on here who have been diagnosed with Li-Fraumeni Syndrome?

    5 answers
    • TinaJacques' Avatar
      TinaJacques

      Thank you so much! Yeah, like I mentioned my sister had leukemia, and two of my mom's sister's had breast cancer (they were both 45 when they got it). I guess it's a long shot and *knock on wood* my parents are both healthy but I'm curious. I was only 25 when I was diagnosed with my cancer.. what are the chances that my sister and I would both be diagnosed so young with cancers and it be a fluke? I've just had a hard time accepting that.

      over 4 years ago
    • TinaJacques' Avatar
      TinaJacques

      not to mention my mom's dad also had breast cancer, but he was 60 I believe when he was diagnosed with it. Then he went on to get lung cancer (he was a smoker) and also another type I think.

      over 4 years ago
    • skyebluelake's Avatar
      skyebluelake

      You may be interested in Linda Zercoe's memoir, "A Kick-XXX Fairy," which is coming out in October 2013. It tells of her struggle to come to terms with with everything that life throws her way. To illuminate what adversity can teach us about life, the author draws upon her own encounters with serious misfortunes – a widow at age 26, breast cancer in her mid-thirties, followed by a primary diagnoses of pancreatic cancer, lung cancer and ultimately the discovery of a rare genetic defect -- Li-Fraumeni Syndrome. Told with rare candor, it offers hope, understanding and inspiration to cancer patients, families, friends and the medical community. For now, check out her blog at: http://www.thecancerian.org.

      over 3 years ago
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    braintumorz asked a questionBrain and Spinal Cord Tumors in Adults

    Are there any 20-somethings who have brain tumors or brain cancer out there? If so I'd like to connect.

    • FuzzyGirl's Avatar
      FuzzyGirl

      Hi Braintumorz: You can meet other survivors through the local Race for Hope-Philadelphia planning committee. We are a group of survivors and loved ones working for a cure, and we support each other.

      over 4 years ago
    • CancerwithJoy's Avatar
      CancerwithJoy

      Hi! It sounds like FuzzyGirl gave some Great advice! I volunteer with a group called Imerman Angels & wanted to tell you about them as another option if you don't already know about em'! http://www.imermanangels.org

      over 4 years ago