• GregP_WN's Avatar

    GregP_WN wrote on Brook's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page, Take a look at it to get you started on some information. You will notice at the left side of that page a listing of most types of cancer. You can scroll down to find your diagnosis. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/

    If you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

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    GregP 3X Survivor
    WhatNext Community Mgr

  • chiefomni's Avatar

    chiefomni wrote on Brook's wall

    I am an esophageal cancer stage III survivor of 18 years. We created the Esophageal Cancer Education Foundation www.fightec.org in part to help patients with their journey through this disease.

    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get at any book store.

    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue.. Go to www.fightec.org and click on services to get more information.

    We also have a 24 hour hotline to help with quality of life questions as well. We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

    Good luck
    Bart

  • Brook's Avatar

    Brook asked a questionEsophagus (Esophageal) Cancer

    Terminal

    11 answers
    • BarbarainBham's Avatar
      BarbarainBham

      Hey, Brook!
      We have esophageal cancer survivors here and many Stage IV survivors with cancer in different locations. Lead a healthy lifestyle and do what your doctor says, and we'll all pray for you, too! If you have acid reflux, it's a priority for you to take care of, as well as it is for me. (My cancer is stomach cancer.)

      Wishing you the Best!

      3 days ago
    • akristine's Avatar
      akristine

      No one has ever told me how long I have to live. I survived retroperitoneal liposarcoma and have been NED since October 2011. I survived breast cancer and have been NED since January 2016. I barely survived necrotizing fasciitis (within minutes of death from liver failure, kidney failure, lung and heart failure) and have been restoring my immune system for a year. I have every expectation that I will overcome all of these attacks on my health and survive so I can help others. Good luck to all of you.

      2 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      Akristine, no one has ever told you how long you have to live because. . . .NOBODY knows that except our Creator!!! Doctors are cancer experts and in trying to be KIND, I think they try to give us an idea how hard we need to fight to get more time on this Earth, but it's just an educated guess based on our scans. Most of us dig our heels in and fight like the Warriors we are, so I appreciate that incentive!

      The long-term result is we all become more aware of our mortality, whether it be sooner or later, and we appreciate everyone and everything so much more than we did. Hopefully we'll enjoy some more time to make more precious memories. Then at some point Believers will be rewarded with Paradise. As LiveWithCancer reminded us recently, it's a Win-Win for us. (Maybe cancer is God's reminder that we all need to be ready to meet him.)

      BROOK, the above is the answer to your question, I think. If you want to share more information about your cancer, we may be able to help more. Wishing you the Best.

      Everyone have a very special Easter Weekend.

      about 22 hours ago
  • Brook's Avatar

    Brook started following

    User: GregP_WN

  • DaveWaz's Avatar

    DaveWaz wrote on Brook's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter