• brosa508's Avatar
  • brosa508's Avatar

    brosa508 asked a questionHodgkin Disease

    Does anyone else have extremely itchy skin?Before my diagnosis that was one of my main symptoms.

    6 answers
    • RAV's Avatar

      I started out with a terrible rash on my legs and I itched for 8 months before anyone diagnosed Hodgkins lymphoma. Two dermotologists and an allergy doctor did not connect itchy skin with Hodgkins. After two chemo infusions the itching finally went away and has not come back. The itching was horrible and the only thing that arrested it was a prednizone shot from the derm doc, but that only lasted four weeks. Can't believe that the derm and allergy doctors did not know about itchy skin and Hodgkins. I let them both know.

      over 5 years ago
    • carolk2222's Avatar

      I was told by my oncologist that the itching is what some patients with cancer will get. He didn't have an answer as to why, he didn't know. He did know that once the treatments started that the itching would be relieved. I also as RAV had gone to my family doc and dermatologist about the itching and they didn't pick up on the hodgkins.

      over 5 years ago
    • barryboomer's Avatar

      I got it After my diagnosis and went to the Dermatologist. He didn't know anything about an itchy rash all over with NHL. He sent samples to U of Miami for a biopsy and it came back as something called Grover's. I've had it for a hear but don't know if it's from the NHL or not...nobody does. I have little things mostly on my back but they can be all over. I Use Eczema Bond Cream with 2% Oatmeal 2-3 times a day all over and clobetesol for flair ups but I use a tiny drop on the troublesome ones. I never thought an Itch could be so bad but when it's everywhere (mostly the back) it's a nightmare. NOW I can sleep as it leaves me alone at night. SO....who knows but it's just ONE more crappy thing to hit me this past year.

      almost 5 years ago
  • brosa508's Avatar

    brosa508 asked a questionHodgkin Disease

    Does anyone else have chemo port pain in their neck and shoulder?

    7 answers
    • gmtb615's Avatar

      I totally get neck and shoulder pain after I've had my chemo pump taken out every other week. Sometimes all I can do is cry when the pain gets so bad. Motrin helps a lot.

      almost 3 years ago
    • Shirlz's Avatar

      I have had my port inn four almost a year..had just plunge round off chemo by a chemo libation through my port.my platelets dropped duo drastically had to have platelet television.those are the only times in a treat I have accessed it.I have a lot of pain that has not started..lost a lot PhD weight so it sticks out so far..hate it,but it did save me a lot of pain.so Ann thankful.& thanks to all for the support of these forums.they help.

      about 1 year ago
    • Kizzyryan's Avatar

      I had a regular port and then had it replaced with a power port and yes it causes me much discomfort I have an appointment to address this with my surgeon. I don’t want to be put under to have a 3 placement done.

      4 months ago
  • brosa508's Avatar
  • brosa508's Avatar

    brosa508 asked a questionHodgkin Disease

    drug side effects

    5 answers
    • cam32505's Avatar

      Have you tried Zofran. That's what they gave me before chemo. It worked better than compazine anyway. You don't want to take metoclopramide, because it can cause some bad side effects if used long-term.

      over 5 years ago
    • alimccalli's Avatar

      Definitely call the doctor's office...there are many types of meds they can give you. Doctors have so many drugs in their arsenals, they will find something for you that will work...I learned to read the drug info for every drug I took, even OTC...one of my oral chemo meds interacted badly with all kinds of things - foods, other meds, etc...a couple times I was prescribed drugs for other things that shouldn't be taken with the chemo drug, and the docs forgot about the interactions because the chemo drug had been prescribed at the beginning of treatment...it helps if you can get all your meds at one pharmacy, and ask the pharmacist for any interactions or possible side effects...if they can see everything you are taking, they can look for potential problems...in the end, we are our own best advocates and safeguards...don't be afraid to ask specific questions about what they prescribe - it's ok to say 'I am allergic to compazine - is this drug different enough that I won't have the same reaction?' or something to that effect...

      over 5 years ago
    • wenblown's Avatar

      I take amend and zofran and have had no issues. I also take compazine without issues but I agree with the others. Lemon drops have helped me in the past

      over 5 years ago
  • brosa508's Avatar

    brosa508 started following

    Question: drug side effects