• Brugesnboots' Avatar

    Brugesnboots asked a questionLung Cancer

    Cell balancing Institute Austria

    12 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I was sent for my first CT scan on Oct 29. I got my first infusion on Dec 5 2012. I joined my clinical trial in July 2013. I was part of that trial for 4 years.

      I was given 4 months to live by my first oncologist. Had it not been for the clinical trial, i doubtless would have succumbed within the first year, but i was lucky and responded to what was then a new drug, Opdivo (nivolumab).

      Best of luck!!

      9 days ago
    • wmsavs' Avatar
      wmsavs

      @Brugesnboots, were you biopsied and had the tumor(s) tested for insights into potential treatments? This can guide you and your oncologist towards appropriate treatments. Just as each individual's DNA is different, their cancer is also different-different molecular composition.

      8 days ago
    • po18guy's Avatar
      po18guy

      For clinical trials, you may search here, according to cancer type. Many trials will pop up, and only a few may be actively recruiting, but it is most likely that something will apply to your situation. www.clinicaltrials.gov/

      8 days ago
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    Brugesnboots asked a questionLung Cancer

    Banner MD Anderson Center Gilbert, AZ

    8 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      @Carool, MDA gets top ranking (they and MSK battle for #1) by magazines. I have known quite a few people who got their treatments there and they didn't have good things to say about how you are treated. They felt more like a project than a person.

      It likely depends on the medical team as to how you feel, but i have heard enough negative things that MDA wouldn't be my first choice, even though it is relatively close to me. (I am not saying i would not go there if they had a treatment that i couldn't get at my hospital, but it wouldn't be my first choice.)

      There are people here that go to MDA. Maybe they feel differently than the people i know.

      8 days ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I love my cancer clinic at UT Southwestern. Everyone is awesome, from the person who checks you in to the aides who take you to your next stop, to the nurses and doctors and researchers. I feel like family there.

      They make it a point to be friendly and caring, despite the size of the organization. My specific oncologist is both cutting edge and tenacious. He doesn't give up. I have a friend whose longtime care center gave up on her 4 years ago. She switched to my doctor. She's battling hard, but she's still here!!

      8 days ago
    • Skyemberr's Avatar
      Skyemberr

      I go to the Scripps MD Anderson center in San Diego. I really like my doctors and have had excellent care there. My surgeons and oncologists are very good.

      They have one of the most advanced palliative care programs in the country as well. I am very well taken care of. I spend an hour or more with my Palliative doctor and her team every month! They try very hard to make sure they understand what is going on with my symptoms and cancer so they can keep my quality of life as high as possible.

      7 days ago
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    User: Queen47

  • Gumpus61's Avatar

    Gumpus61 wrote on Brugesnboots's wall

    Hi Brugesnboots,

    If you have a significant other you might have them read my Blog on "What they don't tell you the day your wife is diagnosed with cancer".....................somebody has to beat the odds, why not you !