• btrotto's Avatar

    btrotto started following

    User: CancerNews

    about 4 years ago
  • btrotto's Avatar

    btrotto started following

    Question: I'm interested in speaking with someone who has mycosis fungoides

    over 5 years ago
  • btrotto's Avatar

    btrotto asked a questionNon-Hodgkin Lymphoma (NHL)

    I'm interested in speaking with someone who has mycosis fungoides

    over 5 years ago
    • GregP_WN's Avatar
      GregP_WN

      https://www.whatnext.com/search?utf8=%E2%9C%93&search%5Bquery%5D=mycosis+fungoides&commit=Search

      While your waiting for someone to answer if they have that Dx or not, you can click on the link above. It will take you to the search results from pasting mycosis fungoides into the diagnoses search bar at the top of the screen. This has some people on it that have listed it. You can click on their profiles and go to their page, and connect with them if you like.

      over 5 years ago
    • carm's Avatar
      carm

      Btrotto,
      Hello,my name is Carm and I am an oncology nurse. If you get no reponses to your query, please feel free to send me a post regarding any unanswered questions you might have regarding your diagnosis. I am here to help. Have a great day, Carm.

      over 5 years ago
    • loupop's Avatar
      loupop

      Hi there, I have had it for about 7 years, I have started a blog www.lousdelirium.com but it is taking me awhile to tell my story. You can contact me there, here or by email [email redacted]

      All the best!

      over 5 years ago
  • btrotto's Avatar

    btrotto started following

    User: GregP_WN

    almost 6 years ago
  • btrotto's Avatar

    btrotto shared an experience

    Side Effects (Fatigue (tiredness))

    almost 6 years ago
  • btrotto's Avatar

    btrotto shared an experience

    Other Care (Other): Extrac - laser therapy - ongoing

    almost 6 years ago

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