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    Hopeful56 wrote on BuckeyeShelby's wall

    Thank you BuckeyeShelby for your recent post. So far I haven't had any nausea from the chemo. Went into work yesterday it felt good. I was so scared of getting sick after chemo. Your response was very comforting.
    Thank you.

    3 Comments
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I was able to work throughout my chemo. Every 3 weeks for a total of 6 treatments. I missed 2 days, other than treatment or dt appointment days. One because my usual Thursday became a Wednesday for treatment, and I was too drugged on a Friday to drive. My worst day was the 2nd day after treatment. Then 2nd to last session, I had a Taxol leak and ended up with a huge chemical burn on my arm. Probably would have been fine, except wr also had a major snow storm. Could have done one or the other, but not both. Hope your treatment is hiccup free.

      1 day ago
    • Hopeful56's Avatar
      Hopeful56

      Thank you for sharing that. Sorry you had to experience a chemical burn.
      I am suppose to have 3 to 4 treatments. So 1 down for me.
      How soon did hair loss start for you?
      How do you feel now after having all the treatments?
      I drank a lot of water day before, day of and after treatment. I read that is very helpful. Was there anything you did to help manage minimal side effects?

      about 11 hours ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      I don't remember exactly when I started shedding. I shaved it about 16 days after the first chemo. I'm almost 5 years out from the start of chemo. The biggest lingering gift is the peripheral neuropathy. Hands aren't bad, but I can't feel my feet. Now don't freak if you start getting numbness. It clears up for a whole lot of people. The big thing I did to minimize side effects was to follow my oncologist's instructions. Especially with anti nausea meds. I only threw up once in 18 weeks. I also let him know about any problems I had, like the foot pain, so he could prescribe appropriate meds. Now is not the time to minimum how you are feeling.

      about 7 hours ago
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    BuckeyeShelby wrote on Jbird's wall

    Hi Jbird. I'm so sorry you are still so heart-sick. A loss like this will be with you always. As time passes, it does get easier to live life w/out feeling guilty. I'm the cancer survivor. I finished treatment in January 2013. My mom got sick and ended up in intensive care in Aug/Sept 2013. She lived in Dayton, OH; I'm in Columbus. She needed to be in skilled nursing so I brought her up here. She had a stroke in Dec 2013 and did not bounce back from it. She ended up in a nursing home, also here in Columbus. She ended up in hospice care in the nursing home in May 2014 and passed away 7/2/14. I still feel guilty that I didn't spend more time with her. That I didn't drive out to visit her at home more. That I didn't go visit her in the nursing home more often. I still miss my mom a lot. Three years later, and sometimes I still find myself in tears. But it happens a lot less than it used to. And there will always be triggers. And year by year the triggers might be different. The first year, Mothers Day was a nightmare -- this year I was fine, but her birthday threw me. I don't want to trivialize it, but sometimes it's like a stone in my shoe -- usually it's some place it doesn't bother me or I've gotten used to it, but it will slide around sometimes and hurt like anything. I find grief to be like that.

    The hospice my mom used has a bereavement program. One of the classes they had was a 6 week meditation workshop. Once that workshop is over, they also have a meditation group that meets once a month. Three years later, I'm still involved in that group -- in fact, our next meeting is this coming Monday. Meditation helped me cope with my loss. They have lots of other programs, too. From one on one counseling to art therapy. With classes/workshops for parents losing children to adults losing parents to a comprehensive children's program. Art to drum circles. You may wish to look for a bereavement program in your area. You'd be with other people who understand what you are going through because they are going through a similar loss. I found it helpful. Maybe sometime like this would help you, too.

    I'm so sorry you lost your brother, and from the sounds of it your best friend, to this monster of a disease. But don't let it defeat you. I doubt he would have wanted you to be defeated. As Carm said, have faith.

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    BuckeyeShelby asked a questionEndometrial (Uterine) Cancer

    Interesting info from Vision Service Plan

    4 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      Wow. I knew they could tell a lot about your health through eye exams. This was all new information, though. Interesting!

      3 days ago
    • DoreenLouise's Avatar
      DoreenLouise

      I developed a thin light blue ring around my iris next to the white part of my eyeball. My iris is dark brown. I have noticed the same discoloration in many women with breast cancer.

      2 days ago
    • Carool's Avatar
      Carool

      Shelby, thank you! I'd heard awhile ago that breast cancer can metastasize to the eye, but then, as that bodily place is almost never mentioned along with the usual places where breast mets usually go, I thought I'd heard wrong.

      1 day ago
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