• BuckeyeShelby's Avatar

    BuckeyeShelby wrote on ArizonaCarolyn's wall

    Hi Carolyn. Thanks for the follow. I temporarily have been less active on the site for the last couple of months. I'm recovering from surgery and am currently dealing with a wound vac. The mass that was removed did include cancer cells, so after almost 8 years, I'm dealing with a recurrence. Won't start treatment until after my wound is healed, which is likely a couple of months. Maybe October.

    I'm sorry you've joined the club. Can't imagine the back pain you are enduring. Hope you get the doctor situation straightened out. When my surgeon releases me, I should just be dealing with my medical oncologist.

    Good luck. I'm glad you found us but sorry you needed to.

  • GregP_WN's Avatar

    GregP_WN wrote on BuckeyeShelby's wall

    just checking on you.

  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on BuckeyeShelby's wall

    Hi Lady. I would like to add my concern to LiveWithCancer’s and state I have been thinking about you daily. I miss you . I realize you have a lot on your plate and just want you to know that I am sending many many positive support and vibes your way. Hope to see you back posting soon and wishing you always better days ahead.

  • LiveWithCancer's Avatar

    LiveWithCancer wrote on BuckeyeShelby's wall

    Hi Shelby,

    We're all thinking about you and worrying because we haven't heard anything from you. We all hope that things are going as well as can be expected (or lots better than that) with your wound healing and potentially your cancer treatment (I forget the timing).

    Please know that we all care a lot about you and miss hearing from you!

    Love,
    Donna

    17 Comments
    • beachbum5817's Avatar
      beachbum5817

      I am so glad to hear that you are home. Things seem better when you get to sleep in your own bed and in your own home.

      8 days ago
    • Jayne's Avatar
      Jayne

      Hoping you get the care you need to feel stronger very soon!

      8 days ago
    • Carool's Avatar
      Carool

      I’m glad your cat forgave you (and that you’re home)! No early-morning wake-ups by nurses!

      6 days ago
  • LiveWithCancer's Avatar

    LiveWithCancer wrote on BuckeyeShelby's wall

    Hi Shelby,

    Just want you know that you are on my mind and in my prayers. I wish we lived closer so that I could help if you needed a ride or a friendly shoulder ...

    Have you learned anything else? How are you doing? And if I'm asking too many questions, just tell me!! I am very concerned about you.

    Donna

    5 Comments
    • LiveWithCancer's Avatar
      LiveWithCancer

      You know what a fan I am of immunotherapy so I'm sort of hoping you'll do the clinical trial. What the radiation oncologist told me when I went to get the tumor on my neck blasted (against my medical oncologist's advice) was that the trial my medical oncologist wanted me to start instead of having radiation was having great results (of course, that was for lung cancer). It was a trial testing immunotherapy and chemotherapy triplet - I can't remember the chemo drugs, but I think carbo was one of them.

      How much longer on the wound vac, do you know? Does that hurt? When my husband had his quad bypass, they took a vein from his leg. He's diabetic which may be the reason why the wound started healing on the outside before it did on the inside. He had to have home health come pack that thing for weeks ... it was excruciating, which is why I didn't try to do for him.

      How are you feeling?

      about 1 month ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Don't know how long on the vac. It could be 3 months, as it's a big wound. It hurts most when the nurse removes the old foam. I have learned to change my own canister. That is just a plastic chamber on the vac so doesn't hurt. It hurts sometimes. And is panic inducing when it starts beeping. Plus not getting the supplies I need. Nurse ordered supplies Monday. Still haven't received them, so I had to go directly to the company supplying the vac for more canisters, which are being couriers over around 1 this afternoon. And he'll call 15 minutes out.

      I have plenty of time to figure out if I wanna play with the clinical. I think some of it will depend on how many chemo sessions either way.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      That is so frustrating to not get the supplies you need!! Don't understand why everything has to be so difficult!!

      I get making decisions based on number of treatments, for sure!!

      about 1 month ago
  • BuckeyeShelby's Avatar